Remember Me
Or use your Academic/Social account:


Or use your Academic/Social account:


You have just completed your registration at OpenAire.

Before you can login to the site, you will need to activate your account. An e-mail will be sent to you with the proper instructions.


Please note that this site is currently undergoing Beta testing.
Any new content you create is not guaranteed to be present to the final version of the site upon release.

Thank you for your patience,
OpenAire Dev Team.

Close This Message


Verify Password:
Verify E-mail:
*All Fields Are Required.
Please Verify You Are Human:
fbtwitterlinkedinvimeoflicker grey 14rssslideshare1
Poland, Fiona; Mapes, Sarah; Pinnock, Hilary; Katona, Cornelius; Sorensen, Susanne; Fox, Chris; Maidment, Ian D (2014)
Publisher: BioMed Central
Journal: BMC Research Notes
Languages: English
Types: Article
Subjects: Biochemistry, Genetics and Molecular Biology(all), Medicines management, Medicine(all), Dementia, Family carers, Project Note, Service user engagement

Classified by OpenAIRE into

mesheuropmc: health care economics and organizations, humanities, social sciences, human activities, health care facilities, manpower, and services
Background: The need for carers to manage medication-related problems for people with dementia living in the community raises dilemmas, which can be identified by carers and people with dementia as key issues for developing carer-relevant research projects.A research planning Public Patient Involvement (PPI) workshop using adapted focus group methodology was held at the Alzheimer's Society's national office, involving carers of people with dementia who were current members of the Alzheimer's Society Research Network (ASRN) in dialogue with health professionals aimed to identify key issues in relation to medication management in dementia from the carer viewpoint. The group was facilitated by a specialist mental health pharmacist, using a topic guide developed systematically with carers, health professionals and researchers. Audio-recordings and field notes were made at the time and were transcribed and analysed thematically. The participants included nine carers in addition to academics, clinicians, and staff from DeNDRoN (Dementias and Neurodegenerative Diseases Research Network) and the Alzheimer's Society. Findings. Significant themes, for carers, which emerged from the workshop were related to: (1) medication usage and administration practicalities, (2) communication barriers and facilitators, (3) bearing and sharing responsibility and (4) weighing up medication risks and benefits. These can form the basis for more in-depth qualitative research involving a broader, more diverse sample. Discussion. The supported discussion enabled carer voices and perspectives to be expressed and to be linked to the process of identifying problems in medications management as directly experienced by carers. This was used to inform an agenda for research proposals which would be meaningful for carers and people with dementia. © 2014 Poland et al.; licensee BioMed Central Ltd.
  • The results below are discovered through our pilot algorithms. Let us know how we are doing!

    • 1. Alzheimers Disease International: World Alzheimer Report 2009. Available on: www.alz.co.uk/research/files/WorldAlzheimerReport.pdf (Accessed 1 March 2013).
    • 2. Department of Health: Living well with dementia: a national dementia strategy. London: The Stationary Office; 2009. Available on https://www.gov. uk/government/publications/living-well-with-dementia-a-national-dementiastrategy (accessed 6 January 2014).
    • 3. Schubert CC, Boustani M, Callahan CM, Perkins AJ, Carney CP, Fox C, Unverzagt F, Hui S, Hendrie HC: Comorbidity profile of dementia patients in primary care: are they sicker? J Am Geriatr Soc 2006, 54:104-109.
    • 4. Pirmohamed M, James S, Meakin S, Green C, Scott AK, Walley TJ, Farrar K, Kevin Park B, Breckenridge AM: Adverse drug reactions as cause of admission to hospital: prospective analysis of 18 820 patients. BMJ 2004, 329:15-19.
    • 5. Gomez-Pavon J, Gonzalez Garcia P, Frances Roman I, Gómez-Pavón J, González García P, Francés Román I, Vidán Astiz M, Gutiérrez Rodríguez J, Jiménez Díaz G, Montero Fernández NP, Alvarez Fernández B, Jiménez Páez JM: Recommendations for the prevention of adverse drug reactions in older adults with dementia. Revista espanola de geriatria y gerontologia 2010, 45:89-96.
    • 6. Maidment ID, Haw C, Stubbs J, Fox C, Katona C, Franklin BD: Medication errors in older people with mental health problems: a review. Int J Geriatr Psychiatry 2008, 23:564-573.
    • 7. Kikkert MJ, Schene AH, Koeter MW, Robson D, Born A, Helm H, Nose M, Goss C, Thornicroft G, Gray RJ: Medication adherence in schizophrenia: exploring patients', carers' and professionals' views. Schizophr Bull 2006, 32:786-794.
    • 8. National Institute of Health: Getting involved at NIH. Maryland: National of Institute of Health; 2005. Available on: http://getinvolved.nih.gov/ public_participation.asp (accessed 22 December 2013).
    • 9. Department of Health: Research - what's in it for consumers? Report of the Standing Advisory Committee on Consumer Involvement in the NHS R&D Programme. London: The Stationary Office; 1998.
    • 10. Coulter A, McGee H: The European Patient of the Future. Maidenhead: Open University Press; 2003.
    • 11. Department of Health: Best Research for Best Health: a new National Health Research Strategy. London: The Stationary Office; 2006.
    • 12. Staniszewska S, Jones N, Newburn M, Marshall S: User involvement in the development of a research bid: barriers, enablers and impacts. Health Expect 2007, 10:173-183.
    • 13. Alzheimers Society: Volunteering for research into dementia. Alzehimers Society website; 2010. Available on: http://www.alzheimers.org.uk/site/scripts/ documents_info.php?documentID=151 (accessed 18 September 2013).
    • 14. Kitzinger J: Qualitative research: introducing focus groups. BMJ 1995, 311:299-302.
    • 15. Kitzinger J: The methodology of focus groups: the importance of interaction between research participants. Social Health Illness 1994, 16:103-121.
    • 16. Maidment ID, Fox C, Boustani M, Katona C: Medication management-the missing link in dementia interventions. Int J Geriatr Psychiatry 2011. doi: 10.1002/gps.2745.
    • 17. Braun V, Clarke V: Using thematic analysis in psychology. Qual Res Psychol 2006, 3:77-101.
    • 18. Holmes HM, Hayley DC, Alexander GC, Sachs GA: Reconsidering medication appropriateness for patients late in life. Arch Int Med 2006, 166:605-609.
    • 19. Gillespie R, Mullan J, Harrison L: Managing medications: the role of informal caregivers of older adults and people living with dementia: a review of the literature. J Clin Nurs 2013 . doi: 10.1111/jocn.12519.
    • 20. Caron-Flinterman JF, Broerse JEW, Bunders JFG: The experiential knowledge of patients: a new resource for biomedical research? Soc Sci Med 2005, 60:2575-2584.
  • No related research data.
  • No similar publications.

Share - Bookmark

Cite this article