Remember Me
Or use your Academic/Social account:


Or use your Academic/Social account:


You have just completed your registration at OpenAire.

Before you can login to the site, you will need to activate your account. An e-mail will be sent to you with the proper instructions.


Please note that this site is currently undergoing Beta testing.
Any new content you create is not guaranteed to be present to the final version of the site upon release.

Thank you for your patience,
OpenAire Dev Team.

Close This Message


Verify Password:
Verify E-mail:
*All Fields Are Required.
Please Verify You Are Human:
fbtwitterlinkedinvimeoflicker grey 14rssslideshare1
Kelly, Fiona; Innes, Anthea (2014)
Languages: English
Types: Article
Providing support in the form of information, advice and access to services or social events is promoted as beneficial for people newly diagnosed with dementia and their families. This paper reports on key findings from an evaluation of a post-diagnostic support pilot project in Scotland addressing local service gaps, namely information provision, emotional and practical support and maintaining community links. Twenty-seven participants (14 people newly diagnosed with dementia and 13 family carers) were interviewed at two time points: T1 shortly after joining the pilot project and T2 approximately six months later, to ascertain their views on existing services and the support offered by the pilot project. A comparative thematic analysis revealed that the project facilitated increased independence (associated with increased motivation and self-confidence) of people with dementia. The project illustrates what can be achieved if resources are targeted at providing individualised post-diagnostic support, particularly where there are service delivery gaps.
  • The results below are discovered through our pilot algorithms. Let us know how we are doing!

    • Bowes, A., Mackintosh, S., & Andrews, J. (2009). Baseline assessment of current information provision to people with dementia and their carers. Edinburgh, UK: NHS Quality Improvement Scotland. Retrieved from http://tinyurl.com/nhsqisinfoprovision.
    • Capus, J. (2005). The Kingston Dementia Cafe: The benefits of establishing an Alzheimer cafe for carers and people with dementia. Dementia, 4(4), 588-591.
    • Carver, C. (1997). You want to measure coping but your protocol's too long: Consider the Brief COPE. International Journal of Behavioural Medicine, 4(1), 92-100.
    • Clare, L. (2002). Developing awareness about awareness in early stage dementia: The role of psychosocial factors. Dementia, 1(3), 295-312.
    • Clare, L., Roth, I., & Pratt, R. (2005). Perceptions of change over time in early-stage Alzheimer's disease: Implications for understanding awareness and coping style. Dementia, 4(4), 487-520.
    • Connell, C., Roberts, J., McLaughlin, S., & Carpenter, B. (2009). Black and white adult family members' attitudes toward a dementia diagnosis. Journal of the American Geriatrics Society, 57, 1562-1568.
    • Department of Health. (2009). Living well with dementia: A national dementia strategy. London, UK: Author. Retrieved from http://www.iow.nhs.uk/uploads/General/pdfs/Living%20well%20 with%20dementia%20-%20a%20National%20Dementia%20Strategy%20-%20Accessible%20 Summary.pdf.
    • Department of Health, Social Services and Public Safety. (2010). Consultation on improving dementia services in Northern Ireland - A regional strategy. Retrieved from http://www.dhsspsni.gov.uk/ showconsultations?txtid¼42566.
    • Dijkhuizen, M., Clare, L., & Pearce, A. (2006). Striving for connection: Appraisal and coping among women with early-stage Alzheimer's disease. Dementia, 5(1), 73-94.
    • Fielding, N., & Thomas, H. (2002). Qualitative interviewing. In N. Gilbert (Ed.), Researching social life (2nd ed. pp. 123-144). London, UK: Sage.
    • Gilmour, T. (2011). Facing dementia together project, Alzheimer Scotland. Retrieved from http:// www.alzscot.org/assets/0000/1821/Facing-dementia-together-post-diagnostic-support-pilot.pdf.
    • Goffman, E. (1968). Stigma. Englewood Cliffs, NJ: Prentice Hall.
    • Hertogh, C. (2011). The misleading simplicity of advance directives. International Psychogeriatrics, 23(4), 511-515.
    • Innes, A., Kelly, F., & Dincarslan, O. (2011). Care home design for people with dementia: what do people with dementia and their family carers value? Aging and Mental Health, 15(5), 548-556.
    • Innes, A., Kelly, F., Bowes, A., Macintosh, S., & Robertson, J. (2011). 'Facing dementia together': Post diagnostic support pilot for people with dementia and their families in Renfrewshire and East Renfrewshire. Final project Evaluation Report, University of Stirling, Stirling.
    • Kitwood, T. (1997). Dementia reconsidered: The person comes first. Buckingham, UK: Open University Press.
    • Knapp, M., & Prince, M. (2007). Dementia UK: Report to the Alzheimer's Society, King's College and LSE. London, UK: The Stationary Office. Retrieved from http://alzheimers.org.uk/site/scripts/ download_info.php?fileID¼2.
    • Logsdon, R. G., Gibbons, L. E., McCurry, S. M., & Teri, L. (2002). Assessing quality of life in older adults with cognitive impairment. Psychosomatic Medicine, 64, 510-519.
    • Mason, E., Clare, L., & Pistrang, N. (2005). Processes and experiences of mutual support in professionally-led support groups for people with early-stage dementia. Dementia, 4(1), 87-112.
    • McKillop, J., & Wilkinson, H. (2004). Make it easy on yourself! Advice to researchers from someone with dementia on being interviewed. Dementia, 3(2), 117-125.
    • Mental Health Foundation. (2011). Personalisation and dementia: a practitioner's guide to self-directed support for people living with dementia. London, UK: Mental Health Foundation.
    • Miesen, B., & Blom, M. (2001). The Alzheimer cafe´ : A guideline manual for setting one up. Retrieved from http://www.alzheimercafe´ .co.uk/Acrobat/HOW_TO.pdf.
    • Moniz-Cook, E., Vernooij-Dassen, M., Woods, B., Orrell, M. Interdem Network. (2011). Psychosocial interventions in dementia care research: The INTERDEM manifesto. Aging & Mental Health, 15(3), 283-290.
    • Mountain, M., & Craig, C. (2012). What should be in a self-management programme for people with early dementia? Aging & Mental Health, 16(5), 576-583.
    • Pratt, R., Clare, L., & Aggarwal, N. (2005). The 'talking about memory coffee group': A new model of support for people with early stage dementia and their families. Dementia, 4(1), 143-148.
    • Sampson, E., Jones, L., Thune-Boyle, I., Kukkastenvehmas, R., King, M., Leurent, B., . . . Blanchard, M. (2010). Palliative assessment and advance care planning in severe dementia: An exploratory randomized controlled trial of a complex intervention. Palliative Medicine, 25(3), 197-209.
    • Scottish Government. (2007). HEAT targets. Retrieved from http://www.scotland.gov.uk/Topics/ Health/NHS-Scotland/17273/targets.
    • Scottish Government. (2010). Scotland's national dementia strategy. Edinburgh, UK: St. Andrew's House.
    • Scottish Government. (2013). Social care (self-directed support) (Scotland) Act 2013. Retrieved from http://www.selfdirectedsupportscotland.org.uk/sds-act/
    • Silverman, D. (2005). Doing qualitative research (Second Edition). London, UK: Sage.
    • Sixsmith, A., & Gibson, G. (2007). Music and the well-being of people with dementia. Ageing & Society, 27(1), 127-154.
  • No related research data.
  • No similar publications.

Share - Bookmark

Cite this article