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Publisher: BioMed Central
Journal: BMC Women's Health
Languages: English
Types: Article
Subjects: Research Article, PCOS, Chronic conditions, Online support, Polycystic Ovary Syndrome, Peer support
Background: Polycystic Ovary Syndrome is a common, chronic condition which affects women living with the condition both physically and psychologically. Social support may be beneficial to sufferers in coping with chronic conditions and the Internet is becoming a common place for accessing social support and information. The aim of this study was to consider the experiences of women living with Polycystic Ovary Syndrome who access and participate in an online support group discussion forum dedicated to issues surrounding this condition.\ud \ud Methods: Fifty participants responded to a series of open-ended questions via an online survey.\ud \ud Results: Thematic analysis revealed a number of empowering and disempowering experiences associated with online support group participation. The empowering processes reported by members of the group included: Connecting with others who understand; Access to information and advice; Interaction with healthcare professionals; Treatment-related decision making; Improved adjustment and management. In terms disempowering processes, only two were described by group participants: Reading about the negative experiences of others and Feeling like an outsider.\ud \ud Conclusions: For women living with Polycystic Ovary Syndrome, participation within an online support group may help to empower them in a range of important ways however, there may be some disempowering consequences.
  • The results below are discovered through our pilot algorithms. Let us know how we are doing!

    • 1. Farquhar C: Introduction and history of polycystic ovary syndrome. In Polycystic ovary syndrome. Edited by Kovacs G, Norman R. Cambridge: Cambridge University Press; 2007:4-24.
    • 2. Balen A, Glaser A: Health conditions and treatments affecting fertility in childhood and teenage years. In Sexuality and fertility issues in ill health and disability: from early adolescence to adulthood. Edited by Balen R, Crawshaw M. London: Jessica Kingsley Publishers; 2006:67-84.
    • 3. NHS: Symptoms of polycystic ovary syndrome. http://www.nhs.uk/ Conditions/Polycystic-ovarian-syndrome/Pages/Symptoms.aspx.
    • 4. Legro RS: Phenotype and genotype in polycystic ovary syndrome. In Polycystic ovary syndrome. Edited by Kovacs G, Norman R. Cambridge: Cambridge University Press; 2007:25-41.
    • 5. Teede H, Kovacs G, Norman R: Insulin sensitizers in the treatment of polycystic ovary syndrome. In Polycystic ovary syndrome. Cambridge: Cambridge University Press; 2007:65-80.
    • 6. NHS: Treating polycystic ovary syndrome. http://www.nhs.uk/Conditions/ Polycystic-ovarian-syndrome/Pages/Treatment.aspx.
    • 7. Sinclair R, Green J: Skin manifestations of polycystic ovary syndrome. In Polycystic ovary syndrome. Edited by Kovacs G, Norman R. Cambridge: Cambridge University Press; 2007:102-120.
    • 8. Kousta E, Franks S: Long-term health consequences of polycystic ovary syndrome. In Polycystic ovary syndrome. Edited by Kovacs G, Norman R. Cambridge: Cambridge University Press; 2007:81-101.
    • 9. Norman R, Moran L: Lifestyle factors in the etiology and management of polycystic ovary syndrome. In Polycystic ovary syndrome. Edited by Kovacs G, Norman R. Cambridge: Cambridge University Press; 2007:121-139.
    • 10. Benson S, Hahn S, Tan S, Mann K, Janssen OE, Schedlowski M, Elsenbruch S: Prevalence and implications of anxiety in polycystic ovary syndrome: results of an internet-based survey in Germany. Hum Reprod 2009, 24:1446-1451.
    • 11. Jedel E, Waern M, Gustafson D, Landn M, Eriksson E, Holm G, Nilsson L, Lind A-K, Janson PO, Stener-Victorin E: Anxiety and depression symptoms in women with polycystic ovary syndrome compared with controls matched for body mass index. Hum Reprod 2010, 25:450-456.
    • 12. Tan S, Hahn S, Benson S, Janssen OE, Dietz T, Kimmig R, Hesse-Hussain J, Mann K, Schedlowski M, Arck PC, Elsenbruch S: Psychological implications of infertility in women with polycystic ovary syndrome. Hum Reprod 2008, 23:2064-2071.
    • 13. Lipton MG, Sherr L, Elford J, Rustin MHA, Clayton WJ: Women living with facial hair: the psychological and behavioural burden. J Psychosom Res 2006, 61:161-168.
    • 14. Adali E, Yildizhan R, Kurdoglu M, Kolusari A, Edirne T, Sahin HG, Yildizhan B, Kamaci M: The relationship between clinico-biochemical characteristics and psychiatric distress in young women with Polycystic Ovary Syndrome. J Int Med Res 2008, 36:1188-1196.
    • 15. Alvarez-Blasco F, Luque-Ramı'rez M, Escobar-Morreale H: Obesity impairs general health-related quality of life (HR-QoL) in premenopausal women to a greater extent than polycystic ovary syndrome (PCOS). Clin Endocrinol (Oxf ) 2010, 73:595-601.
    • 16. Elsenbruch S, Hahn S, Kowalsky D, Öffner AH, Schedlowski M, Mann K, Janssen OE: Quality of life, psychosocial well-being, and sexual satisfaction in women with polycystic ovary syndrome. J Clin Endocrinol Metab 2003, 88:5801-5807.
    • 17. Ching HJ, Burke V, Stuckey BGA: Quality of life and psychological morbidity in women with polycystic ovary syndrome: body mass index, age and the provision of patient information are significant modifiers. Clin Endocrinol 2007, 66:373-379.
    • 18. Domar AD, Clapp D, Slawsby E, Kessel B, Orav J, Freizinger M: The impact of group psychological interventions on distress in infertile women. Health Psychol 2000, 19:568-575.
    • 19. Percy CA, Gibbs T, Potter L, Boardman S: Nurse-led peer support group: Experiences of women with polycystic ovary syndrome. J Adv Nurs 2009, 65:2046-2055.
    • 20. Avery JC, Braunack-Mayer AJ: The information needs of women diagnosed with Polycystic Ovarian Syndrome - implications for treatment and health Outcomes. BMC Womens Health 2007, 7:9.
    • 21. Mousiolis A, Michala L, Atksaklis A: Polycystic ovary syndrome: double click and right check. What do patients learn from the Internet about PCOS? Eur J Obstet Gynecol Reprod Bio 2012, 163:43-46.
    • 22. Coulson NS, Buchanan H, Aubeeluck A: Social support in cyberspace: a content analysis of communication within a Huntington's disease online support group. Patient Educ Couns 2007, 68:173-178.
    • 23. Wright KB, Bell SB: Health-related support groups on the internet: Linking empirical findings to social support and computer-mediated communication theory. J Health Psychol 2003, 8:39-54.
    • 24. Buchanan H, Coulson NS: Accessing dental anxiety online support groups: An exploratory qualitative study of motives and experiences. Patient Educ Couns 2007, 66:263-269.
    • 25. Griffiths KM, Mackinnon AJ, Crisp DA, Christensen H, Bennett K, Farrer L: The effectiveness of an online support group for members of the community with depression: A randomised controlled trial. PloS One 2012, 7:e53244.
    • 26. Attard A, Coulson NS: A thematic analysis of patient communication in Parkinson's disease online support group discussion forums. Comp Hum Behav 2012, 28:500-506.
    • 27. Evans M, Donell L, Hume-Loveland L: Social support and online postpartum depression groups: a content analysis. Patient Educ Couns 2012, 87:405-410.
    • 28. Stewart M, Barnfather A, Magill-Evans J, Ray L, Letourneau N: An online support intervention: perceptions of adolescents with physical disabilities. J Adolesc 2011, 34:795-800.
    • 29. van Uden-Kraan CF, Drossaert CHC, Taal E, Shaw BR, Seydel ER, van de Laar MAFJ: Empowering processes and outcomes of participation in online support groups for patients with breast cancer, arthritis, or fibromyalgia. Qual Health Res 2008, 18:405-417.
    • 30. van Uden-Kraan CF, Drossaert CHC, Taal E, Seydel ER, van de Laar MAFJ: Self-reported differences in empowerment between lurkers and posters in online patient support groups. J Med Internet Res 2008, 10:e18.
    • 31. Mo PKH, Coulson NS: Developing a model for online support group use, empowering processes and psychosocial outcomes for individuals living with HIV/AIDS. Psych Health 2012, 27:445-459.
    • 32. Zimmerman MA: Psychological empowerment: issues and illustrations. Am J Community Psychol 1995, 23:581-599.
    • 33. Coulson NS: How do online patient support communities affect the experience of inflammatory bowel disease? An online survey. J R Soc Med Sh Rep 2013, 4:1-8.
    • 34. Dowdy D: Emotional needs of teens with polycystic ovary syndrome. J Pediatr Nurs 2007, 27:55-64.
    • 35. Percy C, Murray S: The role of an online peer-to-peer health community in addressing psychosocial concerns and social support in polycystic ovary syndrome. Int J Web-based Commun 2010, 6:349-361.
    • 36. Coulson NS, Knibb R: Coping with food allergy: exploring the role of the online support group. Cyberpsychol Behav 2007, 10:145-148.
    • 37. Braun V, Clarke V: Using thematic analysis in psychology. Qual Res Psychol 2006, 3:77-101.
    • 38. Coulson NS, Shaw RL: Nurturing health-related online support groups: exploring the experiences of patient moderators. Comp Human Behav 2013, 29:1695-1701.
  • Inferred research data

    The results below are discovered through our pilot algorithms. Let us know how we are doing!

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