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Kautto, E; Olsson, C; Ivarsson, A; Lyon, Phil; Hornell, A; Alex, L (2016)
Publisher: Science and Education Publishing
Languages: English
Types: Article
Subjects: gender, Public Health, Global Health, Social Medicine and Epidemiology, Other Social Sciences not elsewhere specified, Gender Studies, Genusstudier, celiac disease, masculinity, social norms, Folkhälsovetenskap, global hälsa, socialmedicin och epidemiologi, young males, Övrig annan samhällsvetenskap
From earlier studies, men diagnosed with celiac disease are known to be less troubled by their experiences of living with the disease than are diagnosed women. Previous studies, concentrating on men with celiac disease have been mostly quantitative, and have a bio-medical emphasis. The aim of this study was to explore the social experience of young men with screening-detected celiac disease and to highlight daily life situations five years after diagnosis. Seven young men, diagnosed with celiac disease when they were 13 years-olds through a large Swedish school-based celiac screening-study, were interviewed. The semi-structured interviews were analyzed from a gender perspective which resulted in three themes; being subjected to changes, striving for normality and emphasizing commitment. These were underpinned by several sub-themes. The young men dissociated themselves from being seen as a person with a life-long chronic disease. The analysis also showed that the young men's daily experiences of living with celiac disease largely depended on their use of characteristics known to be associated with masculinity: such as being self-assured, demanding, and behaving authoritatively. In food situations, where the young men had the ability to make use of such characteristics in their informal group, they experienced fewer negative aspects of the disease. If the young men did not hold a strong position in their informal group, their situation was insecure and vulnerable and this could lead to avoidance of contacts and social meal situations. © Science and Education Publishing.
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    • [1] Myleus, A., Ivarsson, A., Webb, C., Danielsson, L., Hernell, O., Hogberg, L., Karlsson, E., Lagerqvist, C., Norstrom, F., Rosen, A., Sandstrom, O., Stenhammar, L., Stenlund, H., Wall, S. and Carlsson, A., Celiac disease revealed in 3% of Swedish 12-yearolds born during an epidemic. Journal of Pediatric Gastroenterology and Nutrition, 49(2). 170-176. 2009.
    • [2] Stordal, K., Bakken, I., Suren, P. and Stene, L., Epidemiology of coeliac disease and co-morbidity in Norwegian children. Journal of Pediatric Gastroenterology and Nutrition, 57(4). 467-471. 2013.
    • [3] White,L., Merrick, V., Bannerman, E., Russell, R., Basude, D., Henderson, P., Wilson, D. and Gillett, P., The rising incidence of celiac disease in Scotland. Pediatrics 132(4). e924-931. 2013.
    • [4] Green, P. and Cellier, C., Celiac disease. New England Journal of Medicine, 357(17):. 1731-1743. 2007.
    • [5] Hall, N., Rubin, G. and Charnock, A., Systematic review: adherence to a gluten-free diet in adult patients with coeliac disease. Alimentary Pharmacology and Therapeutics, 30(4). 315-330. 2009.
    • [6] Bellini, A., Zanchi, C., Martelossi,S., Di Leo, G., Not, T. and Ventura, A., Compliance with the gluten-free diet: the role of locus of control in celiac disease. Journal of Pediatrics, 158(3). 463-466, e5. 2011.
    • [7] Ljungman, G. and Myrdal, U.,Compliance in teenagers with coeliac disease - a Swedish follow-up study. Acta Paediatrica, 82(3), 235-238. 2009.
    • [8] Hallert, C., Granno, C., Grant, C., Hulten, S., Midhagen, G., Strom, M., Svensson, H., Valdimarsson ,T. and Wickstrom, T., Quality of life of adult coeliac patients treated for 10 years. Scandinavian Journal of Gastroenterology, 33(9). 933-938. 1998.
    • [9] Ciacci, C., D'Agate, C., De Rosa, A., Franzese, C., Errichiello, S., Gasperi, V., Pardi, A., Quagliata, D., Visentini, S. and Greco, L., Self-rated quality of life in celiac disease. Digestive Diseases and Sciences, 48(11). 2216-2220. 2003.
    • [10] Tontini, G., Rondonotti, E., Saladino, V., Saibeni, S., De Franchis, R. and Vecchi, M., Impact of gluten withdrawal on health-related quality of life in celiac subjects: an observational case-control study. Digestion, 82(4). 221-228. 2010.
    • [11] Zampieron, A., Daicampi, C., Martin, A. and Buja, A., Quality of life in adult celiac disease in a mountain area of northeast Italy. Gastroenterological Nursing, 34(4). 313-319. 2011.
    • [12] Paavola, A., Kurppa, K., Ukkola, A., Collin, P., Lahdeaho, M., Huhtala. H., Maki, M. and Kaukinen, K., Gastrointestinal symptoms and quality of life in screen-detected celiac disease. Digestive and Liver Disease, 44(10). 814-818. 2012.
    • [13] Zarkadas, M., Dubois, S., MacIsaac, K., Cantin, I., Rashid, M., Roberts, K., La Vieille, S., Godefroy, S. and Pulido, O., Living with coeliac disease and a gluten-free diet: a Canadian perspective. Journal of Human Nutrition and Dietetics, 26(1). 10-23. 2013.
    • [14] Wiess, B., Skourikhin, Y., Modan-Moses, D., Broide, E., Fradkin, A. and Bujanover, Y., Is adult height of patients with celiac disease influenced by delayed diagnosis. American Journal of Gastroenterology, 103(7). 1770-1774. 2008.
    • [15] Olen, O., Montgomery, S., Marcus, C., Ekbom, A. and Ludvigsson, J., Coeliac disease and body mass index: a study of two Swedish general population-based registers. Scandinavian Journal of Gastroenterology, 44(10). 1198-1206. 2009.
    • [16] Parnanen, A., Kaukinen, K., Helakorpi, S., Uutela, A., Lahdeaho, M., Huhtala, H., Collin, P., Maki, M. and Kurppa, K., Symptomdetected and screen-detected celiac disease and adult height: a large cohort study. European Journal of Gastroenterology and Hepatology, 24(9). 1066-1070. 2012.
    • [17] Sonti, R., Lebwohl, B., Lewis, S., Abu Daya, H., Klavan, H., Aguilar, K. and Green, P., Men with celiac disease are shorter than their peers in the general population European Journal Gastroenterology and Hepatology, 25(9). 1033-1037. 2013
    • [18] Stulp, G., Buunk, A., Verhulst, S. and Pollet, T. Human height is positively related to interpersonal dominance in dyadic interactions. PLoS One, 10(2). 2015.
    • [19] Yancey, G. and Emerson, M., Does height matter? An examination of height preferences in romantic coupling. Journal of Family Issues, 37(1). 53-73. 2016.
    • [20] West, C. and Zimmerman, D., Doing gender. Gender and Society, 1(2). 121-151. 1987.
    • [21] Connell, R.,Masculinities,University of California Press, Berkely, 1995.
    • [22] Connell, R., Gender, health and theory: conceptualizing the issue, in local and world perspective. Social Science and Medicine, 74(11). 1675-1683. 2012.
    • [23] de Visser, R. and McDonnell, E., Man points: masculine capital and young men's health. Health Psychology, 32(1). 5-14. 2013.
    • [24] Gough, B., Real men don't diet: an analysis of contemporary newspaper representations of men, food and health. Social Science and Medicine, 64(2), 326-337. 2007.
    • [25] Jeffries, M. and Grogan, S., Oh, I'm just, you know, a little bit weak because I'm going to the doctor's: young men's talk of selfreferral to primary healthcare services. Psychology and Health, 27(8). 898-915. 2012.
    • [26] Graneheim, U. and Lundman, B., Qualitative content analysis in nursing research: concepts, procedures and measures to achieve trustworthiness. Nurse Education Today, 24(2). 105-112. 2004.
    • [27] Connell, R. and Messerschmidt, J. Hegemonic masculinity: rethinking the concept. Gender and Society, 19(6). 829-859.2005.
    • [28] Bernardes, S. and Lima, M. Being less of a man or less of a woman: perceptions of chronic pain patients' gender identities. European Journal of Pain, 14(2). 194-199. 2010.
    • [29] Fabiani, E., Taccari, L., Ratsch, I., Di Giuseppe, S., Coppa, G. and Catassi, C., Compliance with gluten-free diet in adolescents with screening-detected celiac disease: a 5-year follow-up study. Journal of Pediatrics, 136(6). 841-843. 2000.
    • [30] Kurppa, K., Lauronen, O., Collin, P., Ukkola, A., Laurila, K., Huhtala, H., Maki, M. and Kaukinen, K. Factors associated with dietary adherence in celiac disease: a nationwide study. Digestion, 86(4), 309-314. 2012.
    • [31] Landstedt, E., Asplund, K. and Gillander Gadin, K., Understanding adolescent mental health: the influence of social processes, doing gender and gendered power relations. Sociology of Health and Illness, 31(7). 962-978. 2009.
    • [32] Maliski, S., Rivera, S., Connor, S., Lopez, G. and Litwin, M., Renegotiating masculine identity after prostate cancer treatment. Qualitative Health Research, 18(12). 1609-1620. 2008.
    • [33] Williams, C., Doing health, doing gender: teenagers, diabetes and asthma. Social Science and Medicine, 50(3). 387-396. 2000.
    • [34] Connell, R., Masculinity construction and sports in boys' education: a framework for thinking about the issue. Sport, Education and Society, 13(2):. 131-145. 2008.
    • [35] Olsson, C., Lyon, P., Hornell, A., Ivarsson, A. and Mattsson Sydner, Y. Food that makes you different: the stigma experienced by adolescents with celiac disease. Qualitative Health Research, 19(7). 976-984. 2009.
    • [36] Hallert, C., Sandlund, O. and Broqvist, M., Perceptions of healthrelated quality of life of men and women living with coeliac disease. Scandinavian Journal of Caring Sciences, 17(3). 301-307. 2003.
    • [37] Hartmann,C., Dohle, S. and Siegris, M., Importance of cooking skills for balanced food choices. Appetite,65. 125-131. June 2013.
    • [38] Lupton, D., Where's me dinner?: food preparation arrangements in rural Australian families. Journal of Sociology, 36(2). 172-186. 2000.
    • [39] Szabo, M., I'm a real catch: the blurring of alternative and hegemonic masculinities in men's talk about home cooking. Women's Studies International Forum, 44. 228-235. May-June 2014.
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