LOGIN TO YOUR ACCOUNT

Username
Password
Remember Me
Or use your Academic/Social account:

CREATE AN ACCOUNT

Or use your Academic/Social account:

Congratulations!

You have just completed your registration at OpenAire.

Before you can login to the site, you will need to activate your account. An e-mail will be sent to you with the proper instructions.

Important!

Please note that this site is currently undergoing Beta testing.
Any new content you create is not guaranteed to be present to the final version of the site upon release.

Thank you for your patience,
OpenAire Dev Team.

Close This Message

CREATE AN ACCOUNT

Name:
Username:
Password:
Verify Password:
E-mail:
Verify E-mail:
*All Fields Are Required.
Please Verify You Are Human:
fbtwitterlinkedinvimeoflicker grey 14rssslideshare1
Publisher: The Alzheimer's Association
Journal: Alzheimer's & Dementia
Languages: English
Types: Article
Subjects: BF, Psychiatry and Mental health, Dementia, Family caregivers, Family carers, Informal carers, Measurement Alzheimer's disease, Quality of life, Systematic review, Epidemiology, Geriatrics and Gerontology, Clinical Neurology, Health Policy, Cellular and Molecular Neuroscience, Developmental Neuroscience

Classified by OpenAIRE into

mesheuropmc: health care economics and organizations, humanities, health care facilities, manpower, and services, social sciences, human activities
INTRODUCTION: Family carers of people with dementia are their most important support in practical, personal, and economic terms. Carers are vital to maintaining the quality of life (QOL) of people with dementia. This review aims to identify factors related to the QOL of family carers of people with dementia. METHODS: Searches on terms including "carers," "dementia," "family," and "quality of life" in research databases. Findings were synthesized inductively, grouping factors associated with carer QOL into themes. RESULTS: A total of 909 abstracts were identified. Following screening, lateral searches, and quality appraisal, 41 studies (n = 5539) were included for synthesis. A total of 10 themes were identified: demographics; carer-patient relationship; dementia characteristics; demands of caring; carer health; carer emotional well-being; support received; carer independence; carer self-efficacy; and future. DISCUSSION: The quality and level of evidence supporting each theme varied. We need further research on what factors predict carer QOL in dementia and how to measure it.
  • The results below are discovered through our pilot algorithms. Let us know how we are doing!

    • [1] Alzheimer's Disease International. The Global Economic Impact of Dementia. London, England: Alzheimer's Disease International (ADI); 2010.
    • [2] Alzheimer's Disease International. World Alzheimer's Report 2009. London, England: Alzheimer's Disease International; 2009.
    • [3] Department of Health. Living Well with Dementia: A National Dementia Strategy. London: TSO; 2009.
    • [4] Banerjee S, Murray J, Foley B, Atkins L, Schneider J, Mann A. Predictors of institutionalisation in people with dementia. J Neurol Neurosurg Psychiatry 2003;74:1315-1316.
    • [5] Nolan M, Keady J, Grant G. Developing a typology of family care: implications for nurses and other service providers. J Adv Nurs 1995; 21:256-265.
    • [6] Murray J, Schneider J, Banerjee S, Mann A. EUROCARE: a cross-national study of co-resident spouse carers for people with Alzheimer's disease: II-a qualitative analysis of the experience of caregiving. Int J Geriatr Psychiatry 1999;14:662-667.
    • [7] Aneshensel CS, Pearlin LI, Mullan JT, Zarit SH, Whitlatch CJ. Profiles in Caregiving: The Unexpected Career. Academic Press; 1995.
    • [8] O'Rourke N, Tuokko H. The psychological and physical costs of caregiving: The Canadian Study of Health and Aging. J Appl Gerontol 2000;19:389-404.
    • [9] Cooper C, Balamurali T, Livingston G. A systematic review of the prevalence and covariates of anxiety in caregivers of people with dementia. Int Psychogeriatr 2007;19:175-195.
    • [10] Moise P, Schwarzinger M, Um M-Y. Dementia Care in 9 OECD Countries. Paris: OECD Publishing; 2004.
    • [11] Schoenmakers B, Buntinx F, Delepeleire J. Factors determining the impact of care-giving on caregivers of elderly patients with dementia. A systematic literature review. Maturitas 2010;66:191-200.
    • [12] Crellin NE, Orrell M, McDermott O, Charlesworth G. Self-efficacy and health-related quality of life in family carers of people with dementia: a systematic review. Aging Ment Health 2014;18:954-969.
    • [13] de Oliveira DC, Vass C, Aubeeluck A. Ageing and quality of life in family carers of people with dementia being cared for at home: a literature review. Qual Prim Care 2015;23:18-30.
    • [14] Zacharopoulou G, Zacharopoulou V, Lazakidou A. Quality of life for caregivers of elderly patients with dementia and measurement tools: a review. Int J Health Res Innov 2015;3:49-64.
    • [15] Manthrope J, Bowling A. Quality of life measures for carers for people with dementia: measurement issues, gaps in research and promising paths. Res Policy Plan 2016;31:163-178.
    • [16] Moher D, Liberati A, Tetzlaff J, Altman DG. Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement. Ann Intern Med 2009;151:264-269.
    • [17] Greenhalgh T, Peacock R. Effectiveness and efficiency of search methods in systematic reviews of complex evidence: audit of primary sources. BMJ 2005;331:1064-1065.
    • [18] Qi X, Yang M, Ren W, Jia J, Wang J, Han G, et al. Find duplicates among the PubMed, EMBASE, and Cochrane library databases in systematic review. PLoS One 2013;8.
    • [19] Pluye P, Gagnon MP, Griffiths F, Johnson-Lafleur J. A scoring system for appraising mixed methods research, and concomitantly appraising qualitative, quantitative and mixed methods primary studies in mixed studies reviews. Int J Nurs Stud 2009;46:529-546.
    • [20] Popay J, Roberts H, Sowden A, Petticrew M, Arai L, Rodgers M, et al. Guidance on the conduct of narrative synthesis in systematic reviews. A Product from the ESRC Methods Programme Version 1, 2006.
    • [21] Sallis JF, Cervero RB, Ascher W, Henderson KA, Kraft MK, Kerr J. An ecological approach to creating active living communities. Annu Rev Public Health 2006;27:297-322.
    • [22] Stubbs B, Eggermont L, Soundy A, Probst M, Vandenbulcke M, Vancampfort D. What are the factors associated with physical activity (PA) participation in community dwelling adults with dementia? A systematic review of PA correlates. Arch Gerontol Geriatr 2014;59:195-203.
    • [23] Vancampfort D, Vanderlinden J, Stubbs B, Soundy A, Pieters G, Hert MD, et al. Physical activity correlates in persons with binge eating disorder: a systematic review. Eur Eat Disord Rev 2014;22:1-8.
    • [24] Costa B, Sanvitto A, Turazzini M, Silvestri M. Alzheimer disease and caregivers' stress. Neurol Sci 2000;21:S165.
    • [25] Jones C, Edwards RT, Hounsome B. Qualitative exploration of the suitability of capability based instruments to measure quality of life in family carers of people with dementia. ISRN Family Med 2014; 2014:919613.
    • [26] Vellone E, Piras G, Talucci C, Cohen MZ. Quality of life for caregivers of people with Alzheimer's disease. J Adv Nurs 2008;61:222-231.
    • [27] Vellone E, Piras G, Venturini G, Alvaro R, Cohen MZ. Quality of life for caregivers of people with Alzheimer's disease living in Sardinia, Italy. J Transcult Nurs 2012;23:46-55.
    • [28] Duggleby WD, Swindle J, Peacock S, Ghosh S. A mixed methods study of hope, transitions, and quality of life in family caregivers of persons with Alzheimer's disease. BMC Geriatr 2011;11:88.
    • [29] Alvira MC, Risco E, Cabrera E, Farre M, Rahm Hallberg I, Bleijlevens MH, et al. The association between positive-negative reactions of informal caregivers of people with dementia and health outcomes in eight European countries: a cross-sectional study. J Adv Nurs 2015;71:1417-1434.
    • [30] Bleijlevens MH, Stolt M, Stephan A, Zabalegui A, Saks K, Sutcliffe C, et al. Changes in caregiver burden and health-related quality of life of informal caregivers of older people with Dementia: evidence from the European RightTimePlaceCare prospective cohort study. J Adv Nurs 2015;71:1378-1391.
    • [31] Bruvik FK, Ulstein ID, Ranhoff AH, Engedal K. The quality of life of people with dementia and their family carers. Dement Geriatr Cogn Disord 2012;34:7-14.
    • [32] Papastavrou E, Andreou P, Middleton N, Papacostas S, Georgiou IK. Factors associated with quality of life among family members of patients with dementia in Cyprus. Int Psychogeriatr 2014;26:443-452.
    • [33] Santos RL, Sousa MF, Simo~es-Neto JP, Nogueira ML, Belfort TT, Torres B, et al. Caregivers' quality of life in mild and moderate dementia. Arq Neuropsiquiatr 2014;72:931-937.
    • [34] Argimon JM, Limon E, Vila J, Cabezas C. Health-related quality-oflife of care-givers as a predictor of nursing-home placement of patients with dementia. Alzheimer Dis Assoc Disord 2005;19:41-44.
    • [35] Riedijk SR, De Vugt ME, Duivenvoorden HJ, Niermeijer MF, Van Swieten JC, Verhey FR, et al. Caregiver burden, health-related quality of life and coping in dementia caregivers: a comparison of frontotemporal dementia and Alzheimer's disease. Dement Geriatr Cogn Disord 2006;22:405-412.
    • [36] Serrano-Aguilar PG, Lopez-Bastida J, Yanes-Lopez V. Impact on health-related quality of life and perceived burden of informal caregivers of individuals with Alzheimer's disease. Neuroepidemiology 2006;27:136-142.
    • [37] Fauth E, Hess K, Piercy K, Norton M, Corcoran C, Rabins P, et al. Caregivers' relationship closeness with the person with dementia predicts both positive and negative outcomes for caregivers' physical health and psychological well-being. Aging Ment Health 2012; 16:699-711.
    • [38] Nogueira MM, Neto JP, Sousa MF, Santos RL, Rosa RD, Belfort T, et al. Spouse-caregivers' quality of life in Alzheimer's disease. Int Psychogeriatr 2015;27:837-845.
    • [39] Black BS, Johnston D, Rabins PV, Morrison A, Lyketsos C, Samus QM. Unmet needs of community-residing persons with dementia and their informal caregivers: findings from the maximizing independence at home study. J Am Geriatr Soc 2013;61:2087-2095.
    • [40] Andrieu S, Rive B, Guilhaume C, Kurz X, Scuvee-Moreau J, Grand A, et al. New assessment of dependency in demented patients: impact on the quality of life in informal caregivers. Psychiatry Clin Neurosci 2007;61:234-242.
    • [41] Novelli MM, Caramelli P. The influence of neuropsychiatry and functional changes on quality of life in Alzheimer's disease. Dement Neuropsychol 2010;4:47-53.
    • [42] Schiffczyk C, Romero B, Jonas C, Lahmeyer C, Mu€ller F, Riepe MW. Efficacy of short-term inpatient rehabilitation for dementia patients and caregivers: prospective cohort study. Dement Geriatr Cogn Disord 2013;35:300-312.
    • [43] Takai M, Takahashi M, Iwamitsu Y, Oishi S, Miyaoka H. Subjective experiences of family caregivers of patients with dementia as predictive factors of quality of life. Psychogeriatrics 2011;11:98-104.
    • [44] V€alim€aki TH, Vehvil€ainen-Julkunen KM, Pietil€a AM, Pirttil€a TA. Caregiver depression is associated with a low sense of coherence and health-related quality of life. Aging Ment Health 2009; 13:799-807.
    • [45] Lopez-Bastida J, Serrano-Aguilar P, Perestelo-Perez L, OlivaMoreno J. Social-economic costs and quality of life of Alzheimer disease in the Canary Islands, Spain. Neurology 2006;67:2186-2191.
    • [46] V€alim€aki TH, Martikainen JA, Hongisto K, V€a€at€ainen S, Sintonen H, Koivisto AM. Impact of Alzheimer's disease on the family caregiver's long-term quality of life: results from an ALSOVA follow-up study. Qual Life Res 2016;25:687-697.
    • [47] Razani J, Kakos B, Orieta-Barbalace C, Wong JT, Casas R, Lu P, et al. Predicting caregiver burden from daily functional abilities of patients with mild dementia. J Am Geriatr Soc 2007;55:1415-1420.
    • [48] Clark MS, Bond MJ. The effect on lifestyle activities of caring for a person with dementia. Psychol Health Med 2000;5:13-27.
    • [49] Conde-Sala JL, Ren~e-Ramırez R, Turro-Garriga O, Gascon-Bayarri J, Juncadella-Puig M, Moreno-Cordon L, et al. Factors associated with the variability in caregiver assessments of the capacities of patients with Alzheimer disease. J Geriatr Psychiatry Neurol 2013;26:86-94.
    • [50] Coen RF, O'Boyle CA, Swanwick GR, Coakley D. Measuring the impact on relatives of caring for people with Alzheimer's disease: quality of life, burden and well-being. Psychol Health 1999;14:253-261.
    • [51] Thomas P, Lalloue F, Preux PM, Hazif-Thomas C, Pariel S, Inscale R, et al. Dementia patients caregivers quality of life: the PIXEL study. Int J Geriatr Psychiatry 2006;21:50-56.
    • [52] Zhang S, Edwards H, Yates P, Li C, Guo Q. Self-efficacy partially mediates between social support and health-related quality of life in family caregivers for dementia patients in Shanghai. Dement Geriatr Cogn Disord 2014;37:34-44.
    • [53] Arons AM, Krabbe PF, Scho€lzel-Dorenbos CJ, van der Wilt GJ, Rikkert MG. Quality of life in dementia: a study on proxy bias. BMC Med Res Methodol 2013;13:110.
    • [54] Moreno JA, Nicholls E, Ojeda N, De los Reyes-Aragon CJ, Rivera D, Arango-Lasprilla JC. Caregiving in dementia and its impact on psychological functioning and health-related quality of life: Findings from a Colombian sample. J Cross cult Gerontol 2015;30:393-408.
    • [55] Perrin PB, Morgan M, Aretouli E, Sutter M, Snipes DJ, Hoyos GR, et al. Connecting health-related quality of life and mental health in dementia caregivers from Colombia, South America. J Alzheimers Dis 2014;39:499-509.
    • [56] Bruce DG, Paley GA, Nichols P, Roberts D, Underwood PJ, Schaper F. Physical disability contributes to caregiver stress in dementia caregivers. J Gerontol A Biol Sci Med Sci 2005;60:345-349.
    • [57] Bell CM, Araki SS, Neumann PJ. The association between caregiver burden and caregiver health-related quality of life in Alzheimer disease. Alzheimer Dis Assoc Disord 2001;15:129-136.
    • [58] Cupidi C, Realmuto S, Lo Coco G, Cinturino A, Talamanca S, Arnao V, et al. Sleep quality in caregivers of patients with Alzheimer's disease and Parkinson's disease and its relationship to quality of life. Int Psychogeriatr 2012;24:1827-1835.
    • [59] Lee D. Health-related quality of life in dementia caregiving: relationships with sleep quality and daytime sleepiness. Prim Care Community Psychiatry 2008;13:119-125.
    • [60] McLennon SM, Habermann B, Rice M. Finding meaning as a mediator of burden on the health of caregivers of spouses with dementia. Aging Ment Health 2011;15:522-530.
    • [61] Coen RF, O'Boyle CA, Coakley D, Lawlor BA. Individual quality of life factors distinguishing low-burden and high-burden caregivers of dementia patients. Dement Geriatr Cogn Disord 2002; 13:164-170.
    • [62] Scho€lzel-Dorenbos CJ, Draskovic I, Vernooij-Dassen MJ, Olde Rikkert MG. Quality of life and burden of spouses of Alzheimer disease patients. Alzheimer Dis Assoc Disord 2009;23:171-177.
    • [63] Tay KC, Seow CC, Xiao C, Lee HM, Chiu HF, Chan SW. Structured interviews examining the burden, coping, self-efficacy, and quality of life among family caregivers of persons with dementia in Singapore. Dementia (London) 2016;15:204-220.
    • [64] Bandura A. Self-Efficacy. Corsini Encycl. Psychol. John Wiley & Sons, Inc.; 2010.
    • [65] Zawadzki L, Mondon K, Peru N, Hommet C, Constans T, Caillard P, et al. Attitudes towards Alzheimer's disease as a risk factor for caregiver burden. Int Psychogeriatr 2011;23:1451-1461.
    • [66] Jones C, Edwards RT, Hounsome B. A systematic review of the costeffectiveness of interventions for supporting informal caregivers of people with dementia residing in the community. Int Psychogeriatr 2012;24:6-18.
    • [67] Fitzpatrick R, Davey C, Buxton MJ, Jones DR. Evaluating patientbased outcome measures for use in clinical trials. Health Technol Assess 1998;2:i-iv. 1-74.
    • [68] Patrick DL, Erickson P. Health Status and Health Policy. Oxford: Oxford University Press; 1993.
    • [69] Logsdon RG, Gibbons LE, McCurry SM, Teri L. Quality of life in Alzheimer's disease: patient and caregiver reports. J Ment Health Aging 1999;5:21-32.
    • [70] Vickrey BG, Hays RD, Maines ML, Vassar SD, Fitten J, Strickland T. Development and preliminary evaluation of a quality of life measure targeted at dementia caregivers. Health Qual Life Outcomes 2009; 7:56.
    • [71] Doward LC. The development of the Alzheimer's carers' quality of life instrument. Qual Life Res 1997;6:639.
    • [72] Knapp M, Comas-Herrera A, Somani A, Banerjee S. Dementia: International Comparisons. London, England: Personal Social Services Research Unit; 2007.
    • [1] Alzheimer's Disease International. The Global Economic Impact of Dementia. London, England: Alzheimer's Disease International (ADI); 2010.
    • [2] Alzheimer's Disease International. World Alzheimer's Report 2009. London, England: Alzheimer's Disease International; 2009.
    • [3] Department of Health. Living Well with Dementia: A National Dementia Strategy. London: TSO; 2009.
    • [4] Banerjee S, Murray J, Foley B, Atkins L, Schneider J, Mann A. Predictors of institutionalisation in people with dementia. J Neurol Neurosurg Psychiatry 2003;74:1315-1316.
    • [5] Nolan M, Keady J, Grant G. Developing a typology of family care: implications for nurses and other service providers. J Adv Nurs 1995; 21:256-265.
    • [6] Murray J, Schneider J, Banerjee S, Mann A. EUROCARE: a cross-national study of co-resident spouse carers for people with Alzheimer's disease: II-a qualitative analysis of the experience of caregiving. Int J Geriatr Psychiatry 1999;14:662-667.
    • [7] Aneshensel CS, Pearlin LI, Mullan JT, Zarit SH, Whitlatch CJ. Profiles in Caregiving: The Unexpected Career. London, England: Academic Press; 1995.
    • [8] O'Rourke N, Tuokko H. The psychological and physical costs of caregiving: The Canadian Study of Health and Aging. J Appl Gerontol 2000;19:389-404.
    • [9] Cooper C, Balamurali T, Livingston G. A systematic review of the prevalence and covariates of anxiety in caregivers of people with dementia. Int Psychogeriatr 2007;19:175-195.
    • [10] Moise P, Schwarzinger M, Um M-Y. Dementia Care in 9 OECD Countries. Paris: OECD Publishing; 2004.
    • [11] Schoenmakers B, Buntinx F, Delepeleire J. Factors determining the impact of care-giving on caregivers of elderly patients with dementia. A systematic literature review. Maturitas 2010;66:191-200.
    • [12] Crellin NE, Orrell M, McDermott O, Charlesworth G. Self-efficacy and health-related quality of life in family carers of people with dementia: a systematic review. Aging Ment Health 2014;18:954-969.
    • [13] de Oliveira DC, Vass C, Aubeeluck A. Ageing and quality of life in family carers of people with dementia being cared for at home: a literature review. Qual Prim Care 2015;23:18-30.
    • [14] Zacharopoulou G, Zacharopoulou V, Lazakidou A. Quality of life for caregivers of elderly patients with dementia and measurement tools: a review. Int J Health Res Innov 2015;3:49-64.
    • [15] Manthrope J, Bowling A. Quality of life measures for carers for people with dementia: measurement issues, gaps in research and promising paths. Res Policy Plan 2016;31:163-178.
    • [16] Moher D, Liberati A, Tetzlaff J, Altman DG. Preferred reporting items for systematic reviews and meta-analyses: The PRISMA statement. Ann Intern Med 2009;151:264-269.
    • [17] Greenhalgh T, Peacock R. Effectiveness and efficiency of search methods in systematic reviews of complex evidence: audit of primary sources. BMJ 2005;331:1064-1065.
    • [18] Qi X, Yang M, Ren W, Jia J, Wang J, Han G, et al. Find duplicates among the PubMed, EMBASE, and Cochrane library databases in systematic review. PLoS One 2013;8.
    • [19] Pluye P, Gagnon MP, Griffiths F, Johnson-Lafleur J. A scoring system for appraising mixed methods research, and concomitantly appraising qualitative, quantitative and mixed methods primary studies in mixed studies reviews. Int J Nurs Stud 2009;46:529-546.
    • [20] Popay J, Roberts H, Sowden A, Petticrew M, Arai L, Rodgers M, et al. Guidance on the conduct of narrative synthesis in systematic reviews. A Product from the ESRC Methods Programme Version 1, 2006.
    • [21] Sallis JF, Cervero RB, Ascher W, Henderson KA, Kraft MK, Kerr J. An ecological approach to creating active living communities. Annu Rev Public Health 2006;27:297-322.
    • [22] Stubbs B, Eggermont L, Soundy A, Probst M, Vandenbulcke M, Vancampfort D. What are the factors associated with physical activity (PA) participation in community dwelling adults with dementia? A systematic review of PA correlates. Arch Gerontol Geriatr 2014;59:195-203.
    • [23] Vancampfort D, Vanderlinden J, Stubbs B, Soundy A, Pieters G, Hert MD, et al. Physical activity correlates in persons with binge eating disorder: a systematic review. Eur Eat Disord Rev 2014;22:1-8.
    • [24] Costa B, Sanvitto A, Turazzini M, Silvestri M. Alzheimer disease and caregivers' stress. Neurol Sci 2000;21:S165.
    • [25] Jones C, Edwards RT, Hounsome B. Qualitative exploration of the suitability of capability based instruments to measure quality of life in family carers of people with dementia. ISRN Family Med 2014; 2014:919613.
    • [26] Vellone E, Piras G, Talucci C, Cohen MZ. Quality of life for caregivers of people with Alzheimer's disease. J Adv Nurs 2008;61:222-231.
    • [27] Vellone E, Piras G, Venturini G, Alvaro R, Cohen MZ. Quality of life for caregivers of people with Alzheimer's disease living in Sardinia, Italy. J Transcult Nurs 2012;23:46-55.
    • [28] Duggleby WD, Swindle J, Peacock S, Ghosh S. A mixed methods study of hope, transitions, and quality of life in family caregivers of persons with Alzheimer's disease. BMC Geriatr 2011;11:88.
    • [29] Alvira MC, Risco E, Cabrera E, Farre M, Rahm Hallberg I, Bleijlevens MH, et al. The association between positive-negative reactions of informal caregivers of people with dementia and health outcomes in eight European countries: a cross-sectional study. J Adv Nurs 2015;71:1417-1434.
    • [30] Bleijlevens MH, Stolt M, Stephan A, Zabalegui A, Saks K, Sutcliffe C, et al. Changes in caregiver burden and health-related quality of life of informal caregivers of older people with Dementia: evidence from the European RightTimePlaceCare prospective cohort study. J Adv Nurs 2015;71:1378-1391.
    • [31] Bruvik FK, Ulstein ID, Ranhoff AH, Engedal K. The quality of life of people with dementia and their family carers. Dement Geriatr Cogn Disord 2012;34:7-14.
    • [32] Papastavrou E, Andreou P, Middleton N, Papacostas S, Georgiou IK. Factors associated with quality of life among family members of patients with dementia in Cyprus. Int Psychogeriatr 2014;26:443-452.
    • [33] Santos RL, Sousa MF, Simo~es-Neto JP, Nogueira ML, Belfort TT, Torres B, et al. Caregivers' quality of life in mild and moderate dementia. Arq Neuropsiquiatr 2014;72:931-937.
    • [34] Argimon JM, Limon E, Vila J, Cabezas C. Health-related quality-oflife of care-givers as a predictor of nursing-home placement of patients with dementia. Alzheimer Dis Assoc Disord 2005;19:41-44.
    • [35] Riedijk SR, De Vugt ME, Duivenvoorden HJ, Niermeijer MF, Van Swieten JC, Verhey FR, et al. Caregiver burden, health-related quality of life and coping in dementia caregivers: a comparison of frontotemporal dementia and Alzheimer's disease. Dement Geriatr Cogn Disord 2006;22:405-412.
    • [36] Serrano-Aguilar PG, Lopez-Bastida J, Yanes-Lopez V. Impact on health-related quality of life and perceived burden of informal caregivers of individuals with Alzheimer's disease. Neuroepidemiology 2006;27:136-142.
    • [37] Fauth E, Hess K, Piercy K, Norton M, Corcoran C, Rabins P, et al. Caregivers' relationship closeness with the person with dementia predicts both positive and negative outcomes for caregivers' physical health and psychological well-being. Aging Ment Health 2012; 16:699-711.
    • [38] Nogueira MM, Neto JP, Sousa MF, Santos RL, Rosa RD, Belfort T, et al. Spouse-caregivers' quality of life in Alzheimer's disease. Int Psychogeriatr 2015;27:837-845.
    • [39] Black BS, Johnston D, Rabins PV, Morrison A, Lyketsos C, Samus QM. Unmet needs of community-residing persons with dementia and their informal caregivers: findings from the maximizing independence at home study. J Am Geriatr Soc 2013;61:2087-2095.
    • [40] Andrieu S, Rive B, Guilhaume C, Kurz X, Scuvee-Moreau J, Grand A, et al. New assessment of dependency in demented patients: impact on the quality of life in informal caregivers. Psychiatry Clin Neurosci 2007;61:234-242.
    • [41] Novelli MM, Caramelli P. The influence of neuropsychiatry and functional changes on quality of life in Alzheimer's disease. Dement Neuropsychol 2010;4:47-53.
    • [42] Schiffczyk C, Romero B, Jonas C, Lahmeyer C, Mu€ller F, Riepe MW. Efficacy of short-term inpatient rehabilitation for dementia patients and caregivers: prospective cohort study. Dement Geriatr Cogn Disord 2013;35:300-312.
    • [43] Takai M, Takahashi M, Iwamitsu Y, Oishi S, Miyaoka H. Subjective experiences of family caregivers of patients with dementia as predictive factors of quality of life. Psychogeriatrics 2011;11:98-104.
    • [44] V€alim€aki TH, Vehvil€ainen-Julkunen KM, Pietil€a AM, Pirttil€a TA. Caregiver depression is associated with a low sense of coherence and health-related quality of life. Aging Ment Health 2009; 13:799-807.
    • [45] Lopez-Bastida J, Serrano-Aguilar P, Perestelo-Perez L, OlivaMoreno J. Social-economic costs and quality of life of Alzheimer disease in the Canary Islands, Spain. Neurology 2006;67:2186-2191.
    • [46] V€alim€aki TH, Martikainen JA, Hongisto K, V€a€at€ainen S, Sintonen H, Koivisto AM. Impact of Alzheimer's disease on the family caregiver's long-term quality of life: results from an ALSOVA follow-up study. Qual Life Res 2016;25:687-697.
    • [47] Razani J, Kakos B, Orieta-Barbalace C, Wong JT, Casas R, Lu P, et al. Predicting caregiver burden from daily functional abilities of patients with mild dementia. J Am Geriatr Soc 2007;55:1415-1420.
    • [48] Clark MS, Bond MJ. The effect on lifestyle activities of caring for a person with dementia. Psychol Health Med 2000;5:13-27.
    • [49] Conde-Sala JL, Ren~e-Ramırez R, Turro-Garriga O, Gascon-Bayarri J, Juncadella-Puig M, Moreno-Cordon L, et al. Factors associated with the variability in caregiver assessments of the capacities of patients with Alzheimer disease. J Geriatr Psychiatry Neurol 2013;26:86-94.
    • [50] Coen RF, O'Boyle CA, Swanwick GR, Coakley D. Measuring the impact on relatives of caring for people with Alzheimer's disease: quality of life, burden and well-being. Psychol Health 1999;14:253-261.
    • [51] Thomas P, Lalloue F, Preux PM, Hazif-Thomas C, Pariel S, Inscale R, et al. Dementia patients caregivers quality of life: the PIXEL study. Int J Geriatr Psychiatry 2006;21:50-56.
    • [52] Zhang S, Edwards H, Yates P, Li C, Guo Q. Self-efficacy partially mediates between social support and health-related quality of life in family caregivers for dementia patients in Shanghai. Dement Geriatr Cogn Disord 2014;37:34-44.
    • [53] Arons AM, Krabbe PF, Scho€lzel-Dorenbos CJ, van der Wilt GJ, Rikkert MG. Quality of life in dementia: a study on proxy bias. BMC Med Res Methodol 2013;13:110.
    • [54] Moreno JA, Nicholls E, Ojeda N, De los Reyes-Aragon CJ, Rivera D, Arango-Lasprilla JC. Caregiving in dementia and its impact on psychological functioning and health-related quality of life: Findings from a Colombian sample. J Cross cult Gerontol 2015;30:393-408.
    • [55] Perrin PB, Morgan M, Aretouli E, Sutter M, Snipes DJ, Hoyos GR, et al. Connecting health-related quality of life and mental health in dementia caregivers from Colombia, South America. J Alzheimers Dis 2014;39:499-509.
    • [56] Bruce DG, Paley GA, Nichols P, Roberts D, Underwood PJ, Schaper F. Physical disability contributes to caregiver stress in dementia caregivers. J Gerontol A Biol Sci Med Sci 2005;60:345-349.
    • [57] Bell CM, Araki SS, Neumann PJ. The association between caregiver burden and caregiver health-related quality of life in Alzheimer disease. Alzheimer Dis Assoc Disord 2001;15:129-136.
    • [58] Cupidi C, Realmuto S, Lo Coco G, Cinturino A, Talamanca S, Arnao V, et al. Sleep quality in caregivers of patients with Alzheimer's disease and Parkinson's disease and its relationship to quality of life. Int Psychogeriatr 2012;24:1827-1835.
    • [59] Lee D. Health-related quality of life in dementia caregiving: relationships with sleep quality and daytime sleepiness. Prim Care Community Psychiatry 2008;13:119-125.
    • [60] McLennon SM, Habermann B, Rice M. Finding meaning as a mediator of burden on the health of caregivers of spouses with dementia. Aging Ment Health 2011;15:522-530.
    • [61] Coen RF, O'Boyle CA, Coakley D, Lawlor BA. Individual quality of life factors distinguishing low-burden and high-burden caregivers of dementia patients. Dement Geriatr Cogn Disord 2002; 13:164-170.
    • [62] Scho€lzel-Dorenbos CJ, Draskovic I, Vernooij-Dassen MJ, Olde Rikkert MG. Quality of life and burden of spouses of Alzheimer disease patients. Alzheimer Dis Assoc Disord 2009;23:171-177.
    • [63] Tay KC, Seow CC, Xiao C, Lee HM, Chiu HF, Chan SW. Structured interviews examining the burden, coping, self-efficacy, and quality of life among family caregivers of persons with dementia in Singapore. Dementia (London) 2016;15:204-220.
    • [64] Bandura A. The Corsini Encyclopedia of Psychology. Hoboken, New Jersey: John Wiley & Sons, Inc.; 2010.
    • [65] Zawadzki L, Mondon K, Peru N, Hommet C, Constans T, Caillard P, et al. Attitudes towards Alzheimer's disease as a risk factor for caregiver burden. Int Psychogeriatr 2011;23:1451-1461.
    • [66] Jones C, Edwards RT, Hounsome B. A systematic review of the costeffectiveness of interventions for supporting informal caregivers of people with dementia residing in the community. Int Psychogeriatr 2012;24:6-18.
    • [67] Fitzpatrick R, Davey C, Buxton MJ, Jones DR. Evaluating patientbased outcome measures for use in clinical trials. Health Technol Assess 1998;2:i-iv. 1-74.
    • [68] Patrick DL, Erickson P. Health Status and Health Policy. Oxford: Oxford University Press; 1993.
    • [69] Logsdon RG, Gibbons LE, McCurry SM, Teri L. Quality of life in Alzheimer's disease: patient and caregiver reports. J Ment Health Aging 1999;5:21-32.
    • [70] Vickrey BG, Hays RD, Maines ML, Vassar SD, Fitten J, Strickland T. Development and preliminary evaluation of a quality of life measure targeted at dementia caregivers. Health Qual Life Outcomes 2009; 7:56.
    • [71] Doward LC. The development of the Alzheimer's carers' quality of life instrument. Qual Life Res 1997;6:639.
    • [72] Knapp M, Comas-Herrera A, Somani A, Banerjee S. Dementia: International Comparisons. London, England: Personal Social Services Research Unit; 2007.
  • Discovered through pilot similarity algorithms. Send us your feedback.

Share - Bookmark

Cite this article