Remember Me
Or use your Academic/Social account:


Or use your Academic/Social account:


You have just completed your registration at OpenAire.

Before you can login to the site, you will need to activate your account. An e-mail will be sent to you with the proper instructions.


Please note that this site is currently undergoing Beta testing.
Any new content you create is not guaranteed to be present to the final version of the site upon release.

Thank you for your patience,
OpenAire Dev Team.

Close This Message


Verify Password:
Verify E-mail:
*All Fields Are Required.
Please Verify You Are Human:
fbtwitterlinkedinvimeoflicker grey 14rssslideshare1
Publisher: Elsevier
Languages: English
Types: Article
Subjects: health

Classified by OpenAIRE into

mesheuropmc: human activities, health care economics and organizations, health care facilities, manpower, and services, social sciences, humanities
As populations age, numbers of older carers are increasing. These carers play a vital role in supporting others, often partners or spouses with dementia.\ud \ud This narrative review synthesised peer-reviewed evidence published over the last two decades concerning the experiences of carers aged over 75 years, specifically exploring whether their experiences differ from those of younger carers. Four electronic databases were searched and 4102 publications were identified. Eighteen studies involving over one thousand carer participants were included (11 quantitative, 6 qualitative, and 1 mixed-methods study). Most studies came from Europe or North America and almost all were cross-sectional, but few directly compared younger and older carers, making it difficult to determine whether carers’ experiences vary with age. Quantitative studies generally emphasised the challenges of caring and frequently highlighted, for example, relationships between carer characteristics and negative outcomes such as burden. Qualitative studies were often more positive, emphasising carers’ active responses and the rewards of caring. The normality of caring was highlighted, with some suggesting that caring may be less challenging for older than for younger carers.\ud \ud As with younger carers, being an older carer can be both rewarding and difficult. Our understanding of the experiences of these older carers would be enhanced with more research specifically comparing older and younger carers or comparing older carers and those not in a caring role. Carers are diverse and future research should explore the experiences of carers from different demographic groups. More longitudinal research perhaps focusing on caring dyads and mutual caring is needed.
  • The results below are discovered through our pilot algorithms. Let us know how we are doing!

    • [1] Office for National Statistics, National Population Projections: 2014-based Statistical Bulletin. 2015, [accessed 22.07.16] http://www.ons.gov.uk/ peoplepopulationandcommunity/populationandmigration/ populationprojections/bulletins/nationalpopulationprojections/2015-10-29.
    • [2] Princess Royal Trust for Carers, Always on call, always concerned. A survey of the experiences of older carers. Princess Royal Trust for Carers: Essex, 2011.
    • [3] Carers Trust, Caring About Older Carers Providing Support for People Caring in Later Life. Carers Trust, 2015.
    • [4] Carers UK and Age UK, Caring in later life. The growing pressure on older carers. Carers UK: London, 2015.
    • [5] B. Schoenmakers, B. Buntinx, J. Delepeleire, Factors determining the impact of care-giving on caregivers of elderly patients with dementia. A systematic literature review, Maturitas 66 (2010) 191-200, http://dx.doi.org/10.1016/j. maturitas.2010.02.009.
    • [6] J.J. McCann, L.E. Herbert, L.A. Beckett, M.C. Morris, P.A. Scherr, D.A. Evans, Comparisons of informal caregiving by black and white older adults in a community population, J. Am. Geriatr. Soc. 48 (12) (2000) 1612-1617, http:// dx.doi.org/10.1111/j.1532-5415.2000.tb03872.x.
    • [7] N. Greenwood, T. Ellmers, J. Holley, G. Cloud, Experiences of social care services amongst older black and minority ethnic and white British carers of stroke survivors: focus group findings, BMJ Open 6 (2016) e009498, http://dx. doi.org/10.1136/bmjopen-2015-009498.
    • [8] N. Greenwood, R. Habibi, R. Smith, J. Manthorpe, Barriers to access and minority ethnic carers' satisfaction with social care services in the community: a systematic review of qualitative and quantitative literature, Health Soc. Care Community (2014), http://dx.doi.org/10.1111/hsc.12116.
    • [9] D.L. Roth, L. Fredman, W.E. Haley, Informal caregiving and its impact on health: a reappraisal from population-based studies, Gerontologist 00 (00) (2015) 1-11, http://dx.doi.org/10.1093/geront/gnu177.
    • [10] M. Pinquart, S. Sörensen, Correlates of physical health of informal caregivers: a meta-analysis, J. Gerontol. Psychol. Sci. 62B (2007) 126-137.
    • [11] C. Cooper, T.B.S. Balamurali, G.A. Livingston, A systematic review of the prevalence and covariates of anxiety in caregivers of people with dementia, Int. Psychogeriatr. 19 (2007) 175-195, http://dx.doi.org/10.1017/ S1041610206004297.
    • [12] Centre for Reviews Dissemination (CRD), Systematic Reviews: CRD's Guidance for Undertaking Reviews in Health Care, CRD, University of York, 2009.
    • [13] D. Moher, A. Liberati, J. Tetzlaff, et al., Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement, Ann. Intern. Med. 151 (4) (2009) 264-269, http://dx.doi.org/10.7326/0003-4819-151-4-200908180- 00135.
    • [14] M. Dixon-Woods, S. Agarwal, D. Jones, B. Young, A. Sutton, Synthesising qualitative and quantitative evidence: a review of possible methods, J. Health Serv. Res. Policy 10 (1) (2005) 45-53b.
    • [15] K.E. Covinsky, R. Newcomer, P. Fox, J. Wood, L. Sands, K. Dane, K. Yaffe, Patient and caregiver characteristics associated with depression in caregivers of patients with dementia, J. Gen. Intern. Med. 18 (12) (2003) 1006-1014, http:// dx.doi.org/10.1111/j.1525-1497.2003.30103.x.
    • [16] J.I. Creese, M. Bédard, K. Brazil, L. Chambers, Sleep disturbances in spousal caregivers of individuals with Alzheimer's disease, Int. Psychogeriatr. 20 (1) (2008) 149-161, http://dx.doi.org/10.1017/S1041610207005339.
    • [17] H.K. Black, A.J. Schwatrz, C.J. Caruso, S.M. Hannum, How personal control mediates suffering: elderly husbands' narratives of caregiving, J. Mens. Stud. 16 (2) (2008) 177-192, http://dx.doi.org/10.3149/jms.1602.177.
    • [18] H. Kraijo, R. de Leeuw, G. Schrijvers, How spouses evaluate nursing home placement of their demented partner: a study about the end of perseverance, Scand. J. Caring Sci. 29 (1) (2014) 101-109, http://dx.doi.org/10.1111/scs. 12137.
    • [19] J. McGarry, A. Arthur, Informal caring in later life: a qualitative study of the experiences of older carers, J. Adv. Nurs. 33 (2) (2001) 182-189, http://dx.doi. org/10.1111/j.1365-2648.2001.01651. x.
    • [20] J. Perry, Wives giving care to husbands with Alzheimer's disease: a process of interpretive caring, Res. Nurs. Health 24 (4) (2002) 307-316, http://dx.doi. org/10.1002/nur.10040.
    • [21] O. Ribeiro, C. Paúl, C. Nogueira, Real men, real husbands: caregiving and masculinities in later life, J. Aging Stud. 21 (2007) 302-313, http://dx.doi.org/ 10.1016/j.jaging.2007.05.005.
    • [22] M. Turner, C. King, C. Thomas, S.G. Brearley, D. Seamark, X. Wang, S. Blake, S. Payne, Caring for a dying spouse at the end of life: 'It's one of the things you volunteer for when you get married': a qualitative study of the oldest carers' experiences, Age Ageing 45 (2016) 421-426.
    • [23] L.M. Laakkonen, M.M. Raivio, U. Eloniemi-Sulkava, M. Saarenheimo, M. Pietila, R.S. Tilvis, K.H. Pitkala, How do elderly spouse care givers of people with Alzheimer's disease experience the disclosure of dementia diagnosis and subsequent care? J. Med. Ethics 34 (2007) 427-430, http://dx.doi.org/10. 1136/jme.2007.021956.
    • [24] A.K. Ekwall, B. Sivberg, I.R. Hallberg, Dimensions of informal care and quality of life among elderly family caregivers, Scand. J. Caring Sci. 18 (2004) 239-248, http://dx.doi.org/10.1111/j.1471-6712.2004.00283.x.
    • [25] A.K. Ekwall, B. Sivberg, I.R. Hallberg, Loneliness as a predictor of quality of life among older caregivers, J. Adv. Nurs. 49 (1) (2005) 23-32, http://dx.doi.org/ 10.1111/j.1365-2648.2004.03260.x.
    • [26] A.K. Ekwall, B. Sivberg, I.R. Hallberg, Older caregivers' coping strategies and sense of coherence in relation to quality of life, J. Adv. Nurs. 57 (6) (2007) 584-596, http://dx.doi.org/10.1111/j.1365-2648.2006.03994.x.
    • [27] A.K. Ekwall, I.R. Hallberg, The association between caregiving satisfaction, difficulties and coping among older family caregivers, J. Clin. Nurs. 16 (2007) 832-844, http://dx.doi.org/10.1111/j.1365- 2702.2006.01382.x.
    • [28] J.H. Carter, K.S. Lyons, B.J. Stewart, P.G. Archbold, R. Scobee, Does age make a difference in caregiver strain? Comparison of young versus older caregivers in early stage Parkinson's disease, Mov. Disord. 25 (6) (2010) 724-730, http://dx. doi.org/10.1002/mds.22888.
    • [29] A.M. Hernandez, S.M. Bigatti, Depression among older mexican american caregivers, Cult. Divers. Ethnic Minor Psychol. 16 (2010) 50-58, http://dx.doi. org/10.1037/a0015867.
    • [30] J. Kochar, L. Fredman, K.L. Stone, J.A. Cauley, Sleep problems in elderly caregivers depend on the level of depressive symptoms: results of the caregiver-study of osteoporotic fractures, J. Am. Geriatr. Soc. 55 (12) (2007) 2003-2009, http://dx.doi.org/10.1111/j.1532-5415.2007.01434.x.
    • [31] J.G. Lyons, J.A. Cauley, L. Fredman, The effects of transitions in caregiving status and intensity of perceived stress among 992 female caregivers and noncaregivers, J. Gerontol. A Biol. Sci. Med. Sci. 70 (8) (2015) 1018-1023, http://dx.doi.org/10.1093/gerona/glv001.
    • [32] M.C. Chen, K.M. Chen, T.P. Chu, Caregiver burden, health status, and resourcefulness of older caregivers, West J. Nurs. Res. 37 (6) (2015) 767-780, http://dx.doi.org/10.1177/0193945914525280.
    • [33] E.O. Chow, H.C.Y. Ho, Caregiver strain, age, and psychological well-being of older spousal caregivers in Hong Kong, J. Soc. Work 15 (5) (2015) 479-497, http://dx.doi.org/10.1177/1468017314549709.
    • [34] L. Tooth, A. Russel, J. Lucke, G. Byrne, C. Lee, A. Wilson, A. Dobson, Impact of cognitive and physical impairment on carer burden and quality of life, Qual. Life Res. 17 (2008) 267-273, http://dx.doi.org/10.1007/s11136-007-9300-7.
    • [35] N. Greenwood, A. Mackenzie, G. Cloud, N. Wilson, Informal carers of stroke survivors-factors influencing carers: a systematic review of quantitative studies, Disabil. Rehabil. 30 (8) (2008) 1329-1349, http://dx.doi.org/10.1080/ 09638280701602178.
    • [36] N. Greenwood, A. Mackenzie, G. Cloud, N. Wilson, Informal primary carers of stroke survivors living at home-challenges, satisfactions and coping: a review of qualitative studies, Disabil. Rehabil. 31 (5) (2008) 337-351, http:// dx.doi.org/10.1080/09638280802051721.
    • [37] A. Ryan, L. Taggart, M. Truesdale-Kennedy, E. Slevin, Issues in caregiving for older people with intellectual disabilities and their ageing family carers: a review and commentary, Int. J. Older People Nurs. 9 (3) (2015) 217-226, http://dx.doi.org/10.1111/opn.12021.
    • [38] C.M. Noël-Miller, Partner caregiving in older cohabiting couples, J. Gerontol. B. Psychol. Sci. Soc. Sci. 66 (3) (2011) 341-353, http://dx.doi.org/10.1093/ geronb/gbr027.
    • [39] P.L. Hudson, C. Remedios, K. Thomas, A systematic review of psychosocial interventions for family carers of palliative care patients, BMC Palliat. Care 9 (2010) 17, http://dx.doi.org/10.1186/1472-684X-9-17.
    • [40] M. Bastawrous, Caregiver burden-a critical discussion, Int. J. Nurs. Stud. 50 (3) (2013) 431-441, http://dx.doi.org/10.1016/j.ijnurstu.2012.10.005.
  • Inferred research data

    The results below are discovered through our pilot algorithms. Let us know how we are doing!

    Title Trust
  • No similar publications.

Share - Bookmark

Cite this article