LOGIN TO YOUR ACCOUNT

Username
Password
Remember Me
Or use your Academic/Social account:

CREATE AN ACCOUNT

Or use your Academic/Social account:

Congratulations!

You have just completed your registration at OpenAire.

Before you can login to the site, you will need to activate your account. An e-mail will be sent to you with the proper instructions.

Important!

Please note that this site is currently undergoing Beta testing.
Any new content you create is not guaranteed to be present to the final version of the site upon release.

Thank you for your patience,
OpenAire Dev Team.

Close This Message

CREATE AN ACCOUNT

Name:
Username:
Password:
Verify Password:
E-mail:
Verify E-mail:
*All Fields Are Required.
Please Verify You Are Human:
fbtwitterlinkedinvimeoflicker grey 14rssslideshare1
Rawlings, G.H.; Reuber, M. (2016)
Publisher: Elsevier
Languages: English
Types: Article
Subjects:
PURPOSE: This is a narrative systematic synthesis of qualitative research investigating patients' accounts of living with psychogenic nonepileptic seizures (PNES). Qualitative methodologies allow patients to share lived experiences in their own words. The examination of patients' own accounts is likely to offer revealing insights into a poorly understood, heterogeneous disorder. METHODS: We identified 21 separate studies about PNES published after 1996 and based on analyses of patients' own words. Papers were synthesised inductively and deductively using an iterative approach. RESULTS: Five key themes emerged from the synthesis of studies capturing accounts from over 220 patients, reflecting experiences of seizure events, diagnosis, treatment and management, emotional events, and impact on daily life. Patients with PNES discussed the phenomenology of their seizures differently from those with epilepsy. PNES were experientially heterogeneous. Many patients shared a sense of uncertainty surrounding PNES, often resisting psychological explanations. Negative experiences with healthcare professionals were common. Patients seeking validation of their experiences often reported feeling ignored or doubted. Many reported past or current stressful events. Some demonstrated insight into their methods of emotional processing. PNES were described as a significant burden associated with financial and psychosocial losses. CONCLUSIONS: Qualitative studies have produced helpful insights into patients' experiences of living with PNES, but many patient groups (men, young people, elderly, non-Western patients) are underrepresented in studies carried out to date. Research capturing these patient groups and using new methods of data collection and qualitative analysis could help to deepen our understanding of this disorder.
  • The results below are discovered through our pilot algorithms. Let us know how we are doing!

    • [1] [2] [3] [4] [5] [6] [7] [8] [9] Smith B. Closing the major gap in PNES research: Finding a home for a borderland disorder. Epilepsy Currents 2014;14(2):63-7. Retrieved from https://www.aesnet.org/sites/default/files/file_attach/epcu-14-2- 63%20Clnical%20Review%20Smith.pdf Dickinson P, Looper KJ. Psychogenic nonepileptic seizures: a current overview.
    • Epilepsia 2012;53:1679 89.
    • Benbadis S. Psychogenic Nonepileptic Seizures. Differential diagnosis of Epilepsy 2005;Section D(42):623-30.
    • Pretorius C, Cronje G. People with Psychogenic non-epileptic seizures: A South African perspective. AJOD 2015;4(1):Art#176,7 pages. http://dx.doi.
    • org/10.4102/ajod.v4i1.176 Thimm A, Bellon, M. The psychosocial effects of psychogenic non-epileptic seizures (PNES). Flinders University, Disability and Community Inclusion, School of Medicine.
    • The Epilepsy Report 2011; 4 6. http://dx.doi.org/10.1007/s11357-010-9157-5.
    • Benbadis SR. Errors in EEGs and the misdiagnosis of epilepsy: Importance, causes, consequences, and proposed remedies. Epilepsy Behav 2007;11(3):257-62.
    • doi:10.1016/j.yebeh.2007.05.013 Cronje G, Pretorius C. The coping styles and health-related quality of life of South African patients with psychogenic nonepileptic seizures. Epilepsy Behav 2013;29;581- 4. doi:10.1016/j.yebeh.2013.09.045 Pretorius C, Sparrow M. Life after being diagnosed with Psychogenic Non-Epileptic Seizures (PNES): A South African perspective. Seizure 2015;30:32-41.
    • doi:10.1016/j.seizure.2015.05.008 Baslet G, Dworetzky BA, Perez DL. Psychogenic Nonepileptic Seizures: A New Direction Clinical EEG and Neuroscience 2015;46(1):3.
    • doi:10.1177/1550059414564521 nonepileptic seizures. Psychosom Med 2010;72:487-97. doi:10.1097/PSY.0b013e3181d96550
    • [11] LaFrance C, Benbadis S. Avoiding the costs of unrecognised psychological nonepileptic seizures. Neurology 2006;1620-1.
    • [12] Reuber M, Elger C. Psychogenic nonepileptic seizures: review and update. Epilepsy Behav 2003;4:205-16. doi:10.1016/S1525-5050(03)00104-5
    • [13] Carson A, Stone J, Hibberd C, Murray G, Duncan R, Coleman R, Warlow C, Roberts R, Pelosi A, Cavanagh J, Matthews K, Goldbeck R, Hansen C, Sharpe M. Disability, -3.
    • [14] Bowen GA. Naturalistic inquiry and the saturation concept: A research note. Qual Res 2008;8:137-52. http://dx.doi.org/10.1177/1468794107085301
    • [15] Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol 2006;3:77-101. doi:10.1191/1478088706qp063oa
    • [16] Reuber M, House AO. Treating patients with psychogenic non-epileptic seizures. Curr Opin Neurol 2002;15(2):207-11. Retrieved from: https://www.docphin.com/research/article-detail/8614881/PubMedID-
    • [17] Russell A. The diagnosis and management of pseudoseizures or psychogenic nonepileptic events. Ann Indian Acad Neurol 2006;9(2):60-71.
    • [18] Lawton G, Mayor R, Howlett S, Reuber M. Psychogenic nonepileptic seizures and health-related quality of life: The relationship with psychological distress and other physical symptoms. Epilepsy Behav 2009;14:167-71. doi:10.1016/j.yebeh.2008.09.029
    • [19] Ataguba JEO, Akazili J. Health care financing in South Africa: moving towards universal coverage. Continuing Medical Education 2010;28(2):74-8.
    • [20] McIntyre D, Garshong B, Mtei G, Meheus F, Thiede M, Akazili J, Ally M, Aikins M, Mulligan J, Goudge J. Beyond fragmentation and towards universal coverage: insights from Ghana, South Africa and the United Republic of Tanzania. Bull World Health Organ 2008;86: 871-6.
    • [21] Wesolowski K. In Post-Apartheid South Africa, Health Care Imbalance Persists: Neurology is Stretched Thin. Neurology Today 2010:28.
    • [22] Harrisa B, Goudgea J, Atagubab JE, McIntyreb D, Nxumaloa N, Jikwanac S, Chersicha M. Inequities in access to health care in South Africa. Journal of Public Health Policy 2011;32:S102 S123.
    • [23] Sedibe, D. Lack of neurologists prevents effective epilepsy treatment. Diseases and Disorders. Retrieved from http://www.health-e.org.za/2011/06/23/lack-of-neurologistsprevents-effective-epilepsy-treatment/
    • [24] Carton S, Thompson P, Duncan J. Nonreaction to the diagnosis and impact on outcome. Seizure 2003;12:287-94. doi:10.1016/S1059-1311(02)00290-X
    • [25] Karakisa I, Montourisb GD, Piperidouc C, Lucianod MS, Meadora KJ, Colee AJ. Patient and caregiver quality of life in psychogenic non-epileptic seizures compared to epileptic seizures. Seizure 2014;23(1):47-54.
    • [26] Myers L, Lancman M, Laban-Grant O, Matznerk B. Psychogenic non-epileptic seizures: predisposing factors to diminished quality of life. Epilepsy Behav, 2012;25:358 62.
  • No related research data.
  • No similar publications.

Share - Bookmark

Cite this article