LOGIN TO YOUR ACCOUNT

Username
Password
Remember Me
Or use your Academic/Social account:

Congratulations!

You have just completed your registration at OpenAire.

Before you can login to the site, you will need to activate your account. An e-mail will be sent to you with the proper instructions.

Important!

Please note that this site is currently undergoing Beta testing.
Any new content you create is not guaranteed to be present to the final version of the site upon release.

Thank you for your patience,
OpenAire Dev Team.

Close This Message

CREATE AN ACCOUNT

Name:
Username:
Password:
Verify Password:
E-mail:
Verify E-mail:
*All Fields Are Required.
Please Verify You Are Human:

OpenAIRE is about to release its new face with lots of new content and services.
During September, you may notice downtime in services, while some functionalities (e.g. user registration, login, validation, claiming) will be temporarily disabled.
We apologize for the inconvenience, please stay tuned!
For further information please contact helpdesk[at]openaire.eu

fbtwitterlinkedinvimeoflicker grey 14rssslideshare1
Williamson, H.; Rumsey, N. (2017)
Publisher: Taylor & Francis
Languages: English
Types: Article
Subjects:
An altered appearance can impact on the psychosocial well-being of adolescent cancer patients, yet patient reports imply a dearth of appearance-related support. Using a two-phase qualitatively driven mixed methods design, 62 health professionals from a range of UK oncology care settings, provided data relating to their views of the impact of appearance changes on adolescent patients (aged 12-18 years), of delivering appearance-related care, and their training needs. Integrated findings were divided into two main outcomes. The first comprises health professionals’ perceptions of the psychosocial and behavioural impacts of appearance-related distress in their patients and their experiences of interventions that prevent or ameliorate appearance concern. The second illustrates personal barriers (among health professionals, adolescents and parents) and organisational barriers that inhibit the delivery of appearance-related support, together with suggestions about how these may be overcome. The needs of patients are extensive and varied, but due to the barriers identified can be poorly addressed. Nonetheless some practitioners are utilising a variety of interventions supported by theory and/or evidence of their success in other clinical areas. Recommendations are made for the content, design and co-ordination of interventions for adolescents and for the content of education programmes to meet the training needs identified by participants.
  • The results below are discovered through our pilot algorithms. Let us know how we are doing!

    • Bhaskar, R. (1989). The possibility of naturalism: A philosophical critique of the contemporary human sciences (2nd Ed). Hemel Hempstead, UK: Harvester.
    • Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology 3, 77-101.
    • Bryman, A. (2007). Barriers to integrating quantitative and qualitative research. Journal of Mixed Methods Research, 1 (8), 8-19.
    • Clarke, A., Thompson, A. Jenkinson, E., Rumsey, N., & Newell, R. (2014). CBT for Appearance Anxiety: Psychosocial Interventions for Anxiety Due to Visible Difference. Oxford, UK: Wiley Blackwell.
    • Coughlan, G., & Clarke, A. (2002). Shame & burns. In P. Gilbert & J. Miles (Eds.), Body shame p. 155-170. Hove: Brunner-Routledge.
    • Creswell, J.W. & Plano Clark, V.L. (2007) Designing and Conducting Mixed Methods research. Thousand Oaks CA: Sage.
    • Dellinger, A.B. & Leech, N.L. (2007). Toward a unified validation framework in mixed methods research. Journal of Mixed Methods Research, 1, 309-332.
    • Dumont, M. & Provost, M.A. (1999). Resilience in adolescents: Protective role of social support, coping strategies, self-esteem, and social activities on experiences of stress and depression. Journal of Youth and Adolescence, 28 (3), 343-363.
    • Dunsmore, J. & Quine, S. (1995). Information, support, and decision-making needs and preferences of adolescents with cancer: implications for health professionals. Journal of Psychosocial Oncology, 13 (4), 39-66.
    • Earle, E.A. & Eiser, C (2007). Children's behaviour following diagnosis of acute lymphoblastic leukaemia: a qualitative longitudinal study. Clinical Child Psychology and Psychiatry, 12 (2), 281-293.
    • Fan, S.Y. & eiser, C.(2009) Body image of children and adolescents with cancer: A systematic review. Body Image, 6(4: 247-56.
    • Farmer, T., Robinson, K., Elliott, S. & Eyles, J. (2006). Developing and implementing a triangulation protocol for qualitative health research. Qualitative Health Research, 16, 377-394.
    • Grinyer, A. (2007). Young People Living with Cancer: Implications for Policy and Practice. Maidenhead: Open University Press.
    • Hagedoorn, M. & Molleman, E. (2006) Facial disfigurement in patients with head and neck cancer: the role of social self-efficacy. Health Psychology, 25(5), 643-647.
    • Hayes, N. (2000). Doing Psychological Research. Buckingham, UK: Open University Press. 21
    • Holmbeck, G.N. (2002). A developmental perspective on adolescent health and illness: an introduction to the special issues. Journal of Pediatric Psychology, 27, 409-415.
    • Hsieh, H-F. & Shannon, S.E. (2005). Three approaches to qualitative content analysis. Qualitative Health Research, 15 (9), 1277-1288.
    • Jenkinson, E., Williamson, H, Byron-Daniel, J., & Moss, T. (2015). A systematic review of psychosocial interventions for children and young people with visible differences resulting from appearance altering conditions, injury or treatment effects. Journal of Pediatric Psychology. doi: 10.1093/jpepsy/jsv048
    • Jones, D.C., Vigfusdottir, T.H. & Lee, Y. (2004). Body image and the appearance culture among adolescent girls and boys: an examination of friend conversations, peer criticism, appearance, magazines, and the internalisation of appearance ideals. Journal of Adolescent Research, 19, 323-339.
    • Kondryn, H, J., Edmondsen, C.L., Hill, J. & O'Brien, T. (2011). Treatment non-adherence in teenage and young adult patients with cancer. The Lancet Oncology, 12 (1), 100-108.
    • Konradsen, H., Kirkevold, M. & Zoffman, V. (2009). Surgical facial cancer treatment: The silencing of disfigurement in nurse-patient interactions. Journal of Advanced Nursing, 65 (11), 2409-2418.
    • Kopel, S.J., Eiser C., Cool, P., Grimer, R.J. & Carter, S.R. (1998). Brief report: assessment of body image in survivors of childhood cancer. Journal of Paediatric Psychology, 23 (2), 141-147.
    • Larouche, S.S. & Chin-Peukert L. (2006). Changes in body image experienced by adolescents with cancer. Journal of Paediatric Oncology Nursing, 23, 200-209.
    • McCaffrey, C.N. (2006). Major stresses and their effects on the well-being of children with cancer. Journal of Paediatric Nursing, 21, 59-66.
    • Moss, T. (2005). The relationship between objective and subjective ratings of disfigurement severity and psychological adjustment. Body Image, 2, 151-159.
    • National Institute for Health care and Excellence (NICE) (2014) Support for commissioning for children and young people with cancer. Retrieved from http://www.nice.org.uk/guidance/qs55/resources/support-for-commissioning-forchildren-and-young-people-with-cancer-253724365
    • Ramini, S.K. Brown, R. & Buckner E.B. (2008). Embracing changes: adaptation by adolescents with cancer. Pediatric Nursing, 34 (1), 72-79.
    • Rickwood, D.J., Deane, F.P, & Wilson, C.J. (2007). When and how do young people seek professional help for mental health problems? MJA, 187 (7), S35-S39. 22
    • Rumsey, N., Clarke, A., White, P. (2003). Exploring the psychosocial concerns of outpatients with disfiguring conditions. Journal of Wound Care. (12) 7,247-252.
    • Rumsey, N., Clarke, A., White, P., Wyn-Williams, M. & Garlick, W. (2004). Altered body image: Appearance-related concerns of people with visible disfigurement. Journal of Advanced Nursing, 48 (5), 443-453.
    • Rumsey, N. & Harcourt, D. (2004). Body image and disfigurement: issues and interventions. Body Image, 1, 83-97.
    • Russell, C., Harcourt, D., Henderson, L. & Marks, D. I. (2010). Patients' experiences of appearance changes following allogeneic bone marrow transplantation. Cancer Nursing, 34, 4, 315-321.
    • Shearsmith-Farthing, K. & Alford, J. (2010). Body image as part of occupational performance assessment. London: Macmillan Publications.
    • Sheng Yu, F. & Eiser, C. (2009). Body image of children and adolescents with cancer: A systematic review. Body Image, 6 (4), 247-256.
    • Smolak, L. (2004). Body image in children and adolescents: Where do we go from here? Body Image, 1, 15-28.
    • Sundberg, K.K., Lampic, C., Bjork, O., Arvidson, J, & Wettergren, L. (2009). Positive and negative consequences of childhood cancer influencing the lives of young adults. European Journal of Oncology Nursing, 13, 164-170.
    • Thompson, A.R (2012). Researching appearance: models, theories and frameworks In N. Rumsey, & D. Harcourt (Eds.), The Oxford Handbook of the Psychology of Appearance (pp. 91-109) London, UK: Oxford University Press.
    • Tindle, D., Denver, K. &. Lilley, F. (2009). Identity, image, and sexuality in young adults with cancer, Seminars in Oncology, 36, 280 - 287.
    • Varni, J.W., Katz, E.R., Colegrove, R. & Dolgin, M. A (1995). Perceived physical appearance and adjustment of children with newly diagnosed cancer: a path analytical model. Journal of Behavioural Medicine, 18, 261-278.
    • Williamson, H., Harcourt, D., Halliwell, E., Frith, H. & Wallace, M. (2010). Adolescents' and parents' experiences of managing the psychosocial impact of appearance change during cancer treatment. Journal of Paediatric Oncology Nursing, 27 (3), 168-175.
    • Williamson, H. & Wallace, M. (2012). When treatment affects appearance (book chapter). In N. Rumsey, & D. Harcourt (Eds.), The Oxford Handbook of the Psychology of Appearance (pp. 414-438) London, UK: Oxford University Press.
    • Woodgate, R.L. (2006). The importance of being there: perspectives of social support by 23
  • No related research data.
  • No similar publications.

Share - Bookmark

Cite this article

Cookies make it easier for us to provide you with our services. With the usage of our services you permit us to use cookies.
More information Ok