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Greenwood, Nan; Habibi, Ruth; Mackenzie, Ann (2012)
Publisher: BioMed Central
Journal: BMC Geriatrics
Languages: English
Types: Article
Subjects: Geriatrics, Research Article, health, RC952-954.6

Classified by OpenAIRE into

mesheuropmc: health care economics and organizations, human activities, health care facilities, manpower, and services, social sciences, humanities
Background - Informal carers play an important role in supporting people with long term conditions living at home.\ud However, the caring role is known to have adverse effects on carers such as poorer emotional health and\ud social isolation. A variety of types of respite may be offered to carers but little is known about carers’\ud experiences of respite and their perceptions of care workers and of the benefits of respite. This study therefore\ud investigated these experiences and perceptions.\ud Method - Recorded, semi-structured interviews were undertaken with twelve carers receiving weekly four hourly\ud respite. Carers were either caring for a person over sixty or were over sixty themselves. Interviews were\ud analysed thematically.\ud Results and Discussion - Respite sometimes alleviated carers’ constant sense of responsibility for their cared for. Trust, whether trust\ud in the service provider or individual care workers, was essential. Carers lacking this trust tended to perceive\ud respite as less beneficial. Low expectations were common with carers frequently unwilling to find fault. Care\ud workers were frequently seen as very kind with some carers valuing their company. Care workers who were\ud flexible, communicated well and responded to the cared for’s needs were valued. Stimulation of the cared for\ud during respite was very important to most carers but the perceived benefits for carers were often very\ud individual. Many carers used respite to catch up with routine, domestic tasks rarely using it to socialise.\ud Conclusions - For many carers, respite was a way of maintaining normality in often difficult, restricted lives. Respite\ud allowed continuation of what most people take for granted. Carers frequently viewed respite as intended to\ud improve their cared for’s quality of life, rather than their own. This centrality of the cared for means that\ud carers can only really benefit from respite if the cared for is happy and also seen to benefit. Future research\ud 3\ud should investigate the perspectives of carers and their cared for, focussing on different demographic groups by\ud features such as age, gender, ethnic and diagnostic groups. However, without greater clarity about what respite\ud is intended to achieve, clear evidence of a positive impact of this intervention may remain difficult to identify.
  • The results below are discovered through our pilot algorithms. Let us know how we are doing!

    • 1. Carers UK: Facts about carers. Policy briefing. London: Carers UK; 2009.
    • 2. Office for National Statistics:; 2009. http://www.ons.gov.uk/ons/index.html.
    • 3. Kramer BJ: Gain in the caregiving experience: Where are we? What next? Gerontologist 1997, 37:218-232.
    • 4. Cohen CA, Colantonio A, Vernich L: Positive aspects of caregiving: rounding out the caregiver experience. Int J Geriatr Psychiatry 2002, 17:184-188.
    • 5. Habermann B, Davis LL: Caring for Family with Alzheimer's Disease and Parkinson's Disease. J Gerontol Nurs 2005, 31(6):49-53.
    • 6. Tarlow BJ, Stephen RW, Rubert M, Ory MG, Gallagher-Thompson D: Positive aspects of caregiving. Res Aging 2004, 26(4):429-453.
    • 7. Mackenzie A, Greenwood N: Positive aspects of caregiving in stroke: a systematic review. Disabil Rehabil 2012, doi:10.3109/09638288.2011.650307.
    • 8. Parker G, Arksey H, Harden M: Meta-review of international evidence on interventions to support carers. University of York: Social Policy Research Unit; Centre for Reviews and Dissemination Working Paper No. DH 2394; 2010.
    • 9. Bass D, McClendon M, Deimling G, Mukherjee S: The influence of a diagnosed mental impairment on family caregiver strain. J Gerontol 1994, 49:S146-155.
    • 10. Drentea P, Clay OJ, Roth D, Mittelman MS: Predictors of improvement in social support: Five-year effects of a structured intervention for caregivers of spouses with Alzheimer's disease. Soc Sci Med 2006, 63:957-967.
    • 11. Hirst M: Health inequalities and informal care. York: Social Policy Research Unit University of York; 2004. https://www.york.ac.uk/inst/spru/pubs/pdf/ healthinequalities.pdf.
    • 12. Jeon YH, Brodaty H, Chesterton J: Respite care for caregivers and people with severe mental illness: literature review. J Adv Nurs 2005, 49(3):297-306.
    • 13. Hanson EJ, Tetley J, Clarke A: Respite care for older people and their family carers: concept analysis and the user focus group findings of a pan-European nursing research project. J Adv Nurs 1999, 30:1396-1407.
    • 14. Nolan M, Grant G: Mid-range theory building and the nursing theorypractice gap: a respite care case study. J Adv Nurs 1992, 17(2):217-223.
    • 15. Twigg J, Atkin K: Carers perceived: Policy and practice in informal care. Buckingham and Philadelphia: Open University Press; 1994.
    • 16. Bamford C, Arksey H, Poole M, Kirkley C, Hughes J, Corner L, Bond J: Personand carer-centred respite care for people with dementia: developing methods of evaluating the effectiveness of different models: Report for the National Institute for Health Research Service Delivery and Organisation programme; 2009. http://www.sdo.nihr.ac.uk/projdetails.php?ref=08-1511-113.
    • 17. Cotterill L, Hayes L, Flynn M, Slope P: Reviewing respite services: some lessons from the literature. Disabil Soc 1997, 12(5):775-788.
    • 18. Cotterill L: Give us a break! Community Care 1995, 23-29:20-21.
    • 19. Arksey H, Jackson K, Croucher K, Weatherly H, Golder S, Hare P, Newbronner E, Baldwin S: Review of respite services and short-term breaks for carers for people with dementia: Report for the National Co-ordinating Centre for NHS Service Delivery and Organisation R & D (NCCSDO); 2004. http://www.sdo. nihr.ac.uk/files/project/48-final-report.pdf20.
    • 20. McNally S, Ben-Shlomo Y, Newman S: The effects of respite on informal carers' well-being: a systematic review. Disabil Rehabil 1999, 21(1):1-14.
    • 21. Mason A, Weatherly H, Spilsbury K, Arksey H, Golder S, Adamson J, Drummond M, Glendinning C: A systematic review of the effectiveness and cost effectiveness of different models of community-based respite care for frail older people and their carers. Health Technology Assessment 2007, 11:1-194.
    • 22. Victor E: A Systematic Review of Interventions for Carers in the UK: Outcomes and Explanatory Evidence: Princess Royal Trust for Carers in association with Young Carers International and the University of Nottingham; 2009. http://static.carers.org/files/systematic-review-15-jan-3840.pdf.
    • 23. Harper DJ, Manasse PR, James O, Newton JT: Intervening to reduce distress in caregivers of impaired elderly people: A preliminary evaluation. Int J Geriatr Psychiatry 1993, 8(2):139-145.
    • 24. Milne D, Pitt I, Sabin N: Evaluation of a carer support scheme for elderly people - the importance of "coping". Brit J Soc Work 1993, 23(2):157-168.
    • 25. O'Donovan S: At the crossroads. Nurs Elder 1992, 4:18-21.
    • 26. Reid G: The north & west dementia project 1st year evaluation. Belfast. Northern Ireland: Department of Health and Social Services; 1992. Cited in [20].
    • 27. Ashworth M, Baker AH: 'Time and space': carers' views about respite care. Health Soc Care Comm 2000, 8(1):50-56.
    • 28. Parahoo K, Campbell A, Scotlock C: An evaluation of a domiciliary respite service for younger people with dementia. J Eval Clin Pract 2002, 8(4):377-385.
    • 29. Ryan T, Nolan M, Reid D, Enderby P: 'You Fetch Me to All the Right Places': An evaluation of the community dementia support service. Sheffield: University of Sheffield; 2002. Cited in [17].
    • 30. Britten N: Qualitative Research: Qualitative interviews in medical research. BMJ 1995, 311:251.
    • 31. Braun V, Clark V: Using thematic analysis in psychology. Qualitative Res Psychol 2006, 3(2):77-101.
    • 32. Elo S, Kyngäs H: The qualitative content analysis process. J Adv Nurs 2008, 62(1):107-115.
    • 33. Princess Royal Trust for Carers & the Royal College of General Practitioners: Supporting Carers: An action guide for general practitioners and their teams. Essex and London: The Princess Royal Trust for Carers/Royal College of General Practitioners; 2008.
    • 34. Greenwood N, Mackenzie A, Cloud G, Wilson N: Loss of autonomy, control and independence when caring: a qualitative study of informal carers of stroke survivors in the first three months after discharge. Disabil Rehabil 2010, 32(2):125-133.
    • 35. Sitzia J, Wood N: Patient satisfaction: A review of issues and concepts. Soc Sci Med 1997, 45(12):1829-1843.
    • 36. O'Cathain A, Murphy E, Nichol J: Why, and how, mixed methods research is undertaken in health services research: A mixed methods study. BMC Health Serv Res 2007, 7:85.
    • 37. O'Cathain A: Mixed methods research in the health sciences. J Mixed Methods Res 2009, 3(1)):3-6.
    • 38. Carers UK: Half a million voices: Improving support for BAME carers. Carers UK: 2011. http://www.carersuk.org/professionals/resources/research-library/item/ 1958-half-a-million-voices-improving-support-for-bame-carers.
    • 39. Netto G: 'I forgot myself': the case for the provision of culturally sensitive respite services for minority ethnic carers. J Public Health Med 1998, 20(2):221-226.
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