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Sundberg, K. K.; Doukkali, E. B.; Lampic, C.; Eriksson, L. E.; Arvidson, J.; Wettergren, L. (2010)
Languages: English
Types: Article
Subjects: RC, RJ
Identifiers:doi:10.1002/pbc.22492
Background: There is a need for more knowledge about how survivors of childhood cancer perceive their lives and what influence current health status has on their quality of life. The purpose was to describe this among a group of long-term survivors and among a comparison group. \ud \ud Procedure: Telephone interviews were performed with a cohort of 246 long-term survivors and 296 randomly selected from the general population using the Schedule for the Evaluation of Individual Quality of Life- Direct Weighting (SEIQoL-DW). The participants nominated the areas they considered to be most important in life and rated the current status of each area on a seven-point category scale. An overall individual index score was calculated as a measure of quality of life. Self-reported health status was assessed using the Short Form Health Survey (SF-36). \ud \ud Results: Long-term survivors rated their overall quality of life and self-reported health status almost in parity with the comparison group. In both groups, family life, relations to other people, work and career, interests and leisure activities were the areas most frequently reported to influence quality of life. The survivors only differed from the comparison group on one of eight SF-36 scales reflecting problems with daily activities owing to physical health. \ud \ud Conclusions: Health status was not shown to have a major impact on overall quality of life, indicating that health and quality of life should be evaluated distinctively as different constructs. This should be taken in consideration in clinical care of children with childhood cancer and long-term survivors.
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    • Gustafsson G, Heyman M, Vernby Å, editors. The development of pediatric oncology in Sweden. Stockholm: 2007. Report.
    • Geenen MM, Cardous-Ubbink MC, Kremer LC, et al. Medical assessment of adverse health outcomes in long-term survivors of childhood cancer. JAMA 2007:297:2705- 2715.
    • Hudson MM, Mertens AC, Yasui Y, et al. Health status of adult long-term survivors of childhood cancer: A report from the Childhood Cancer Survivor Study. JAMA 2003:290:1583-1592.
    • Ness KK, Mertens AC, Hudson MM, et al. Limitations on physical performance and daily activities among long-term survivors of childhood cancer. Ann Intern Med 2005:143:639-647.
    • Oeffinger KC, Mertens AC, Sklar CA, et al. Chronic health conditions in adult survivors of childhood cancer. N Engl J Med 2006:355:1572-1582.
    • Langeveld NE, Stam H, Grootenhuis MA, et al. Quality of life in young adult survivors of childhood cancer. Support Care Cancer 2002:10:579-600.
    • Psychooncology 2002:11:132-141.
    • Pemberger S, Jagsch R, Frey E, et al. Quality of life in long-term childhood cancer survivors and the relation of late effects and subjective well-being. Support Care Cancer 2005:13:49-56.
    • Zeltzer LK, Lu Q, Leisenring W, et al. Psychosocial outcomes and health-related quality of life in adult childhood cancer survivors: a report from the childhood cancer survivor study. Cancer Epidemiol Biomarkers Prev 2008:17:435-446.
    • Elkin TD, Phipps S, Mulhern RK, et al. Psychological functioning of adolescent and young adult survivors of pediatric malignancy. Med Pediatr Oncol 1997:29:582-588.
    • Wallace WHB, Green, D. M, editors. Late effects of childhood cancer. 1st edition London: Arnold; 2004.
    • Arvidson J, Söderhall S, Eksborg S, et al. Medical follow-up visits in adults 5-25 years after treatment for childhood acute leukaemia, lymphoma or Wilms' tumour. Acta Paediatrica 2006:95:922-928.
    • Cella D, Chang CH, Lai JS, et al. Advances in quality of life measurements in oncology patients. Semin Oncol 2002:29 (3 Suppl 8):60-68.
    • Tedeschi RG, Calhoun LG. The Posttraumatic Growth Inventory: measuring the positive legacy of trauma. J Trauma Stress 1996:9:455-471.
    • Lampic C, Thurfjell E, Bergh J, et al. Life values before versus after a breast cancer diagnosis. Res Nurs Health 2002:25:89-98.
    • Frobisher C, Lancashire ER, Winter DL, et al. Long-term population-based marriage rates among adult survivors of childhood cancer in Britain. Int J Cancer 2007:121:846- 855.
    • Langeveld NE, Ubbink MC, Last BF, et al. Educational achievement, employment and living situation in long-term young adult survivors of childhood cancer in the Netherlands. Psychooncology 2003:12:213-225.
    • Stam H, Grootenhuis MA, Last BF. The course of life of survivors of childhood cancer. Psychooncology 2005:14:227-238.
    • Boman KK, Bodegård G. Life after cancer in childhood: social adjustment and educational and vocational status of young-adult survivors. J Pediatr Hematol Oncol 2004:26:354-362.
    • Evans SE, Radford M. Current lifestyle of young adults treated for cancer in childhood. Arch Dis Child 1995:72:423-426.
    • Mårtensson G, Carlsson M, Lampic C. Do nurses and cancer patients agree on cancer patients' coping resources, emotional distress and quality of life? Eur J Cancer Care (Engl) 2008:17:350-360.
    • Pearcy R, Waldron D, O'Boyle C, et al. Proxy assessment of quality of life in patients with prostate cancer: how accurate are partners and urologists? J R Soc Med 2008:101:133-138.
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