Remember Me
Or use your Academic/Social account:


You have just completed your registration at OpenAire.

Before you can login to the site, you will need to activate your account. An e-mail will be sent to you with the proper instructions.


Please note that this site is currently undergoing Beta testing.
Any new content you create is not guaranteed to be present to the final version of the site upon release.

Thank you for your patience,
OpenAire Dev Team.

Close This Message


Verify Password:
Verify E-mail:
*All Fields Are Required.
Please Verify You Are Human:

OpenAIRE is about to release its new face with lots of new content and services.
During September, you may notice downtime in services, while some functionalities (e.g. user registration, login, validation, claiming) will be temporarily disabled.
We apologize for the inconvenience, please stay tuned!
For further information please contact helpdesk[at]openaire.eu

fbtwitterlinkedinvimeoflicker grey 14rssslideshare1
McFadden, Alison; Atkin, Karl; Bell, Kerry; Innes, Nicola; Jackson, Cath; Jones, Helen; MacGillivray, Steve; Siebelt, Lindsay
Publisher: Springer Nature
Journal: International Journal for Equity in Health
Languages: English
Types: Article
Subjects: Trust, Roma, Socially-excluded populations, Case study, Community engagement, Multi-method research, Gypsy/Travellers, Health Policy, Child dental health services, Study Protocol, Maternity services, Early years’ services, Public Health, Environmental and Occupational Health
Background Gypsy/Travellers have poor health and experience discrimination alongside structural and cultural barriers when accessing health services and consequently may mistrust those services. Our study aims to investigate which approaches to community engagement are most likely to be effective at enhancing trust between Gypsy/Travellers and mainstream health services. Methods This multi-method 30-month study, commenced in June 2015, and comprises four stages.Three related reviews: a) systematic review of Gypsy/Travellers’ access to health services; b) systematic review of reviews of how trust has been conceptualised within healthcare; c) realist synthesis of community engagement approaches to enhance trust and increase Gypsy/Travellers’ participation in health services. The reviews will consider any economic literature;Online consultation with health and social care practitioners, and civil society organisations on existing engagement activities, including perceptions of barriers and good practice;Four in-depth case studies of different Gypsy/Traveller communities, focusing on maternity, early years and child dental health services. The case studies include the views of 32–48 mothers of pre-school children, 32–40 healthcare providers and 8–12 informants from third sector organisations.Two stakeholder workshops exploring whether policy options are realistic, sustainable and replicable. Case study data will be analysed thematically informed by the evaluative framework derived from the realist synthesis in stage one. The main outputs will be: a) an evaluative framework of Gypsy/Travellers’ engagement with health services; b) recommendations for policy and practice; c) evidence on which to base future implementation strategies including estimation of costs. Discussion Our novel multi-method study seeks to provide recommendations for policy and practice that have potential to improve uptake and delivery of health services, and to reduce lifetime health inequalities for Gypsy/Travellers. The findings may have wider resonance for other marginalised populations. Strengths and limitations of the study are discussed. Trial registration Prospero registration for literature reviews: CRD42015021955 and CRD42015021950 UKCRN reference: 20036
  • The results below are discovered through our pilot algorithms. Let us know how we are doing!

    • 1. Marmot M, Friel S, Bell R, Houweling TA, Taylor S, Commission on Social Determinants of Health. Closing the gap in a generation: health equity through action on the social determinants of health. Lancet. 2008;372:1661-9.
    • 2. HM Government. Healthy Lives. healthy people: our strategy for public health in England. London: The Stationery Office; 2010.
    • 3. HM Government. Inclusion Health: improving the way we meet the primary health care needs of the socially excluded. London: Cabinet Office; 2010.
    • 4. Estimates on Roma population in European countries. [http://www.coe.int/ en/web/portal/roma/]. Accessed 11 Nov 2016.
    • 5. Wilkin A, Derrington C, Foster B. Improving the outcomes for Gypsy, Roma and Traveller pupils: literature review. London: Department for Chilren, Schools and Families; 2009.
    • 6. Bhopal K, Myers M. Insiders, outsiders and others: Gypsies and identity. Hatfield: University of Hertfordshire Press; 2008.
    • 7. Doyal L, Cameron A, Cemlyn S, Nandy S, Shaw M. The health of Travellers in the South West region: a review of data sources and a strategy for change. Bristol: South West Public Health Observatory; 2002.
    • 8. Aspinall P. Hidden needs: identifying key vulnerable groups in data collections. Vulnerable migrants, Gypsies and Travellers, homeless people, and sex workers. London: National Inclusion Health Board; 2014.
    • 9. Jenkins L. Preparation study of Gypsy/Traveller health needs. Canterbury: University of Kent; 2010.
    • 10. Cemlyn S, Greenfields M, Burnett S, Matthews Z, Whitwell C. Inequalities experienced by Gypsy and Traveller communities: a review. Manchester: Equality and Human Rights Commission; 2009.
    • 11. Dar O, Gobin M, Hogarth S, Lane C, Ramsay M. Mapping the Gypsy Traveller community in England: what we know about their health service provision and childhood immunization uptake. J Public Health. 2013;35:404-12.
    • 12. Francis G. Developing the cultural competence of health professionals working with Gypsy Travellers. J Psychol Issues Org Cult. 2013;3:64-77.
    • 13. Parry G, Van Cleemput P, Peters J, Walters S, Thomas K, Cooper C. Health status of Gypsies and Travellers in England. J Epidemiol Community Health. 2007;61:198-204.
    • 14. Peters J, Parry GD, Van Cleemput P, Moore J, Cooper CL, Walters SJ. Health and use of health services: a comparison between Gypsies and Travellers and other ethnic groups. Ethn Health. 2009;14:359-77.
    • 15. Baker M. Leeds baseline census 2004-2005. Leeds: Leeds Racial Equality Council; 2005. http://www.grtleeds.co.uk/information/census.html.
    • 16. Aspinall P. A review of the literature on the health beliefs, health status, and use of services in the Gypsy Traveller population, and of appropriate health care interventions. Cardiff: Office of the Chief Medical Officer, Welsh Assembly Government; 2005.
    • 17. Beach H. Comparing the use of an Accident and Emergency Department by children from two Local Authority Gypsy sites with that of their neighbours. Public Health. 2006;120:882-4.
    • 18. Gordon M, Gorman D, Hashem S, Stewart D. The health of Travellers' children in Northern Ireland. Public Health. 1991;105:387-91.
    • 19. Feder GS, Vaclavik T, Streetly A. Traveller Gypsies and childhood immunization: a study in east London. Br J Gen Pract. 1993;43:281.
    • 20. Pahl JM, Vaile MS. Health and health care among Travellers. J Soc Policy. 1984;17:195-213.
    • 21. Maduma-Butshe A, McCarthy N. The burden and impact of measles among the Gypsy-Traveller communities, Thames Valley, 2006-09. J Public Health. 2013;35:27-31.
    • 22. Save the Children. Finding the final fifth: inequalities in immunisation. London: Save the Children; 2012. http://www.savethechildren.org.uk/sites/ default/files/docs/Finding-the-Final-Fifth.pdf.
    • 23. Scottish Parliament. Equal Opportunities Committee 3rd Report, 2012 (Session 4) Gypsy/Travellers and care. Edinburgh: Scottish Parliament; 2012.
    • 24. Edwards DM, Watt RG. Oral health care in the lives of Gypsy Travellers in east Hertfordshire. Br Dent J. 1997;183:252-7.
    • 25. Renaissance Research. Gypsy, Roma & Traveller Health Needs Assessment for County Durham and Darlington. Renaissance Research: County Durham and Darlington; 2011.
    • 26. Van Cleemput P. Social exclusion of Gypsies and Travellers: health impact. J Res Nurs. 2010;15:315-27.
    • 27. Matthews Z. The health of Gypsies and Travellers in the UK. London: Race Equality Foundation; 2008.
    • 28. Van Cleemput P, Parry G, Thomas K, Peters J, Cooper C. Health-related beliefs and experiences of Gypsies and Travellers: a qualitative study. J Epidemiol Community Health. 2007;61:205-10.
    • 29. Smart H, Titterton M, Clark C. A literature review of the health of Gypsy/ Traveller families in Scotland: the challenges for health promotion. Health Educ. 2003;103:156-65.
    • 30. McGorrian C, Frazer K, Daly L, Moore RG, Turner J, Sweeney MR, Staines A, Fitzpatrick P, Kelleher CC. The health care experiences of Travellers compared to the general population: the all-Ireland Traveller health study. J Health Serv Res Policy. 2012;17:173-80.
    • 31. Kukla R. Conscientious autonomy: displacing decisions in health care. Hastings Cent Rep. 2005;35:34-44.
    • 32. Ozawa S, Sripad P. How do you measure trust in the health system? A systematic review of the literature. Soc Sci Med. 2013;91:10-4.
    • 33. Department for Communities and Local Government. Progress report by the ministerial working group on tackling inequalities experienced by Gypsies and Travellers. London: Department for Communities and Local Government; 2012.
    • 34. O'Mara-Eves A, Brunton G, McDaid G, Oliver S, Kavanagh J, Jamal F, Matosevic T, Harden A, Thomas J. Community engagement to reduce inequalities in health: a systematic review, meta-analysis and economic analysis. Public Health Res. 2013;1:4.
    • 35. Morgan A, Popay J. Community participation for health: reducing health inequalities and building social capital. In: Scriven A, Garman S, editors. Public health: social context and action. Maidenhead: Open University Press; 2007. p. 154-65.
    • 36. Coulter A. Engaging communities for health improvement: a scoping study for the Health Foundation. London: Health Foundation; 2009.
    • 37. Pawson R, Greenhalgh T, Harvey G, Walshe K. Realist synthesis: an introduction. Manchester: ESRC Research Methods Programme, University of Manchester; 2004.
    • 38. Rolfe A, Cash-Gibson L, Car J, Sheikh A, McKinstry B. Interventions for improving patients' trust in doctors and groups of doctors. Cochrane Database Syst Rev. 2014;(3):CD004134. doi:10.1002/14651858.CD004134.pub3.
    • 39. Ryder A. UK Gypsies and Travellers and the third sector. Birmingham: Third Sector Research Centre; 2011.
    • 40. Van Cleemput P, Bissell P, Harris J. Pacesetters Programme: Gypsy, Roma and Traveller core strand. Evaluation report for the Department of Health. Sheffield: Public Health Section, ScHARR, The University of Sheffield; 2010.
    • 41. Rycroft-Malone J, McCormack B, Hutchinson AM, DeCorby K, Bucknall TK, Kent B, Schultz A, Snelgrove-Clarke E, Stetler CB, Titler M. Realist synthesis: illustrating the method for implementation research. Implement Sci. 2012;7:33.
    • 42. Bristol Online Survey tool. [https://www.onlinesurveys.ac.uk/]. Accessed 11 Nov 2016.
    • 43. Crowe S, Cresswell K, Robertson A, Huby G, Avery A, Sheikh A. The case study approach. BMC Med Res Methodol. 2011;11:100.
    • 44. Jackson C, Bedford H, Condon L, Crocker A, Emslie C, Dyson L, Gallagher B, Kerr S, Lewis HJ, Mytton J. UNderstanding uptake of Immunisations in TravellIng aNd Gypsy communities (UNITING): protocol for an exploratory, qualitative study. BMJ Open. 2015;5:e008564.
    • 45. Sturges JE, Hanrahan KJ. Comparing telephone and face-to-face qualitative interviewing: a research note. Qual Res. 2004;4:107-18.
    • 46. QSR International Pty Ltd. NVivo qualitative data analysis Software; QSR International Pty Ltd. Version 10. 2012.
    • 47. Curtis L. Unit Costs of Health and Social Care 2013. Canterbury: Personal Social Services Research Unit, University of Kent; 2013.
    • 48. Farmer T, Robinson K, Elliott SJ, Eyles J. Developing and implementing a triangulation protocol for qualitative health research. Qual Health Res. 2006; 16:377-94.
    • 49. O'Cathain A, Murphy E, Nicholl J. Three techniques for integrating data in mixed methods studies. Br Med J. 2010;341:c4587.
    • 50. Renfrew MJ, Dyson L, Herbert G, McFadden A, McCormick F, Thomas J, Spiby H. Developing evidence-based recommendations in public healthincorporating the views of practitioners, service users and user representatives. Health Expect. 2008;11:3-15.
    • 51. Parekh N, Rose T. Health inequalities of the Roma in Europe: a literature review. Cent Eur J Public Health. 2011;19:139.
  • No related research data.
  • Discovered through pilot similarity algorithms. Send us your feedback.

Share - Bookmark

Cite this article

Cookies make it easier for us to provide you with our services. With the usage of our services you permit us to use cookies.
More information Ok